kostareyna
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Hi all,
I was wondering if any of you achived seizure controll but decided not to sustain it due to side effects?
I finnaly achived full controll in a wierd combo of medications.
I only take 250mg of keppra a day and 250 mg of zarontine.
The thing is that even after 2.5 years of therapy with keppra the side effects of tiredness and the will or should I say unwill to do anything is still present.
everytime while driving in a car I would fall asleep, and also while using my brain for any task and in general I would really want to fall asleep in the afternoon.after adding the zarontine, the side effects din't increase much but it's hard for me to wake up now in the morning. I know that most of the controll and also the side effects come from the keppra but without it zarontine doesn't do much, it's like the 1% that made me fully controlled at last after so much time and yet I just decided to give up on being stebilized since my spirit is broken. I don't train for almsot 9 months and I used to push myself even tho I din't want to, I can't wake up on time, and for 1.5 years I barely read any books at all especially if it was for pure enjoyment.
My seizures are only myoclonic ones and yet other options have failed, I'm only left to try Klonopin or Zonegran but pretty sure it won't work as keppra since topamax din't fully work and gave me tons of side effects which I still suffer from altho I stopped it more than 6 months ago.
I know the dosages seem funny and small and yet I'm very sensetive and very hard to controll, Infact 1000mg of keppra a day din't do the trick like this combo does and only made me extremley tired. My diagnozise was myoclonic reflex epilepsy with medication sensetivity and resistance since alot of known medications for myoclonus don't work and almost always cause side effects.
My goal was having driver license at first but now I feel that I haven't lived at all in those past 2.5 years since starting keppra
What would you do in my position? Would you quit and even give up on treatment at all, would you be partially controlled if possible, would you stay on the same treatment although the side effects are present and would probably stay forever?
Thank you in advanced for any reply
I was wondering if any of you achived seizure controll but decided not to sustain it due to side effects?
I finnaly achived full controll in a wierd combo of medications.
I only take 250mg of keppra a day and 250 mg of zarontine.
The thing is that even after 2.5 years of therapy with keppra the side effects of tiredness and the will or should I say unwill to do anything is still present.
everytime while driving in a car I would fall asleep, and also while using my brain for any task and in general I would really want to fall asleep in the afternoon.after adding the zarontine, the side effects din't increase much but it's hard for me to wake up now in the morning. I know that most of the controll and also the side effects come from the keppra but without it zarontine doesn't do much, it's like the 1% that made me fully controlled at last after so much time and yet I just decided to give up on being stebilized since my spirit is broken. I don't train for almsot 9 months and I used to push myself even tho I din't want to, I can't wake up on time, and for 1.5 years I barely read any books at all especially if it was for pure enjoyment.
My seizures are only myoclonic ones and yet other options have failed, I'm only left to try Klonopin or Zonegran but pretty sure it won't work as keppra since topamax din't fully work and gave me tons of side effects which I still suffer from altho I stopped it more than 6 months ago.
I know the dosages seem funny and small and yet I'm very sensetive and very hard to controll, Infact 1000mg of keppra a day din't do the trick like this combo does and only made me extremley tired. My diagnozise was myoclonic reflex epilepsy with medication sensetivity and resistance since alot of known medications for myoclonus don't work and almost always cause side effects.
My goal was having driver license at first but now I feel that I haven't lived at all in those past 2.5 years since starting keppra
What would you do in my position? Would you quit and even give up on treatment at all, would you be partially controlled if possible, would you stay on the same treatment although the side effects are present and would probably stay forever?
Thank you in advanced for any reply
