jaysmom
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jason has been seen by the pediatrician again as his tegretol just doesnt do the trick. we have upped his does a few times and even added in a 3rd dose a day but to no avail. he had 10 or 15 partials at school and home within a week and then a drop attack in PE class (grade 8). with this one, he took another blow to the head as he went down on the concrete in the gym doorway. i am getting frusterated and nervous. there was a head MRI and another EEG booked for 3 weeks from now. that is amazing living up north as it usually takes about 2 to 3 months to get the testing done here. he is labelled as URGENT which is nice as it is not as long as a wait but in the same breath, they think something is wrong .....
i dont understand why with all the reading i have done....which is a lot...it says everywhere that drop attacks you loose muscle tone and drop. not consciousness though. jason looses consciousness with every drop. he is out for at least 30 seconds. he does not convulse at all though. just out cold with eyes wide open as if he is dead. does anyone relate to this?
i could use some insight if you would.
getting nervous. after the result of this ( in december) we will be putting jason on topamax. i am not sure if it will be with the tegretol or just alone but nervous to put himon something else after 2 years of tegretol
i dont understand why with all the reading i have done....which is a lot...it says everywhere that drop attacks you loose muscle tone and drop. not consciousness though. jason looses consciousness with every drop. he is out for at least 30 seconds. he does not convulse at all though. just out cold with eyes wide open as if he is dead. does anyone relate to this?
i could use some insight if you would.
getting nervous. after the result of this ( in december) we will be putting jason on topamax. i am not sure if it will be with the tegretol or just alone but nervous to put himon something else after 2 years of tegretol