Glad when someone finaly sees you have a seizure

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valeriedl

valeriedl

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I'm always glad when someone finally sees me have a seizure for the first time. Most people don't know what they are like and they don't know how they will react to it when I have one. After they see me have one then they know what to expect and know what to do.

Is anyone else this way?
 
Valeried,

Most people seem to over react when I have a seizure. I have explained to friends what to do and not to when I have a seizure and when not to call an ambulance because most people freak and think that's the first thing they should do if I have a seizure. I have tonic clonics, simplepartials,complexpartial
 
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Mine are only partials & most people are unaware I'm when having them, even if I space out for a few seconds.

Personally I like it, especially when they don't know I have seizures because when the topic does come up (& it almost always does eventually) & I tell them I have epilepsy it sort of breaks the preconceptions to point out that they've seen me have one and it's not that big a deal.
 
valeriedl said:
I'm always glad when someone finally sees me have a seizure for the first time.

Is anyone else this way?
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Not really. Because, like Belinda said, people tend to think the first thing they need to do is call 911 when I go into a seizure. I've had CPs that go into TC and 911 has been called because it was the first seizure folks had witnessed.
 
Cint said:
I sure do wish mine were only simple partials and no one noticed.
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I've had a few T/Cs & I know what you're talking about. I lost friends & have been followed around the grocery store where I had the T/C for a while so not being noticed is a benefit. That said, it is sometimes hard for people to realize how badly the seizures do effect you (me) because they are so subtle.
 
I find the whole thing humiliating, so I really, really hate it when I have seizures in front of anyone. I had a seizure in front of a doctor and I didn't mind that. But other than that, I hate it. I had a seizure on the side of the road once and people just crowded around and stared as though I was a circus animal. I do tell my friends not to call an ambulance in advance. I used to have a group of friends in my old town who were incredibly sharp about picking up my absence and complex partial seizures, and they would joke about it all the time. I hated that too. There has to be a black sheep in every thread, huh?
 
My friends and family usually joke about the stupid things that I do during a seizure. I think it's pretty funny.

I only have simple and complex partial seizures. These are the type I've had in front of people. I very rarely have a TC and I don't think I've ever had one in front of anyone other than family. I don't know how friends would react seeing me have one.

I did have a TC once at a flea market and my husband said that everyone just walked past me looking at me laying on the ground shaking. Ended up going to the ER by ambulance for that one.

I guess I'm lucky that anytime I've had a seizure in front of someone that's never seen me have one there has always been someone with me who has. This way the person who's never seen it happens knows what to do and why I'm acting the way I am.

I had a complex partial in a store once where I just sat down in the check out aisle and wouldn't move. The woman behind us didn't understand what was going on and why I was doing it, she asked if a breath mint would help.

We had company over during the weekend and I 'woke up' on the couch with a blanket on me. I thought I'd fallen asleep when they were there but it turned out I had a seizure. I guess I got up and walked around the room asking my husband who the people were. They didn't act any differently around me that evening than they did before I had the seizure.

I've had seizures on the phone with people who have never seen me physically have a seizure. I really wish they would have seen me have the seizure but at least they sort of know what I do during them.

It's my husband who's more afraid about how people are going to act when I have a seizure that have never seen me have one. We've told them what I usually do and what to do when I have one. No one's ever seemed to be worried about being around me because I might have a seizure. I figure if I end up in the ER because they freak out then I do.
 
Always a relief when it's witnessed. Had one in the ER about a month ago and they are finally taking me serious and believe me. Actually they are shocked at how bad my seizures actually are. But people also tend to over react if they aren't familiar with the situation so it's kinda a hit and miss


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Lafontaine_b said:
Always a relief when it's witnessed. Had one in the ER about a month ago and they are finally taking me serious and believe me. Actually they are shocked at how bad my seizures actually are. But people also tend to over react if they aren't familiar with the situation so it's kinda a hit and miss


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I was in the hospital waiting room and had a seizure while my husband was having surgery. The women at the desk freaked out and sent me to the ER. I had another one about an hour later while I was in the ER. They couldn't believe that I was having 2 seizures that close together. They were actually arguing with my family that the second seizure I was having wasn't really another seizure because they don't happen that close together.
 
Having more subtle seizures can be difficult as well. I have series of simple partials, one after another, and I looked spaced and out of it. No one knows I'm having seizures and think I'm just acting really weird, and I can't hold up a sign saying, "I'm not weird, I'm having seizures," nor do I really want to enlighten anyone :-) I also have myclonic seizures when I'm really relaxed, and my son has seen those and I wish he hasn't had to see them. The one TC I had really freaked out my ex since he didn't even know it was a seizure--I'd never had a TC and I was 6 months pregnant--he only saw the post-ictal phase when I was bleeding and frothing from the mouth and unresponsive. So I guess I've never really been happy that anyone has seen a seizure!
 
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