Good days and bad days with AED's?

Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!

S

sarahkay03

New
Messages
15
Reaction score
0
Points
0
I was first diagnosed with simple partial seizures about eight months ago. Since then, my seizures have become more frequent, and have moved to complex partial with secondary generalization. I've tried half a dozen different drugs, plus combinations of different ones, and I've had to gradually increase the dosage of whichever drug as the seizures got worse. Right now I'm on 2500mg of Keppra/day, with an increase to 3000 coming soon.

At this point, I've basically been sick from side effects for eight months. I'm so tired of it I am almost to the breaking point. What's most frustrating to me is that I will feel fine for a few days, and then it's right back to being sick. Every time I think I've gotten used to the drug (with a few 'good days'), I wake up nauseous, dizzy, etc and have a few 'bad days' again.

I guess my question is, does anyone else have this problem? Do you still have good days and bad days, even after being on a drug for a while? I feel like I'm going nuts. It doesn't make sense to me why it keeps getting bad again just when I feel okay. I'm confused as to whether it's from the drugs, or from something else. It also might be worth mentioning that I've lost about 30lbs since starting these drugs. I'm not sure if that affects anything. Any input is appreciated. Thanks!
 
I totally now this feeling was like this with tegretol then switched over too modified realease and its like a whole new me the me before the e obviously I still have my bad days but there now few and far between but finding the MR version much better hope your fighting on
 
Since you were diagnosed with partial seizure only 8 months ago, then my question is why is your dr. changing medications so quickly? It does take the body time to metabolize to different meds and there are different meds for different types of seizures. Are you seeing a specialist (an epileptologsit)? I've now been on 3000 mgs. of Keppra for over 10 years and I'm fine with it. Have you had your thyroid checked recently?
 
You must log in or register to reply here.
Back
Top Bottom