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Well I finally got a diagnosis of having E today.
I hate having seizures, but it turns out they're not so bad to have when you're actually sitting in a room with your doctor...
For the longest time he was skeptical, since all my tests have been normal. However I was showing him my journal, talking to him about them, and talking to him about how my medicine (Generic for Keppra) was different because the pharmacy changed manufacturers, and then boom. Seizures showed up to say "hello" from out of nowhere.
Wound up having 5 partials, 2 partial-complex seizures, and an absence seizure. I didn't believe him about the absence seizure because I never knew I had them... I didn't realize anything had happened.
So he was taking notes and studying what was going on, and I was trying to explain to him what I was feeling and experiencing when I could. He decided that this was definitely E related seizure activity, and said likely the generic switch was metabolizing differently, so he put me on name-brand Keppra to control them better and I agreed to let him bump my dose up slightly.
I shook his hand, then left the room, turned back around to say "thank you" one more time, and went into a TC seizure.
I'm not entirely sure what this means, but he said once I'd come out of it and was functioning again that he "could tell from my movements and my eyes that the seizure was epileptic in origin". Again, I don't know what that means, but the guy has been a neurologist for something like 35 years so I'll trust him on his opinion. I certainly didn't see my eyes so I can't comment on what he meant by that. At the time, I didn't much care either.
So after causing quite a drama at the Neurologists office today, I finally got a diagnosis. I'm a little bit out of it, but I'm recovering faster than normal, and the medicine feels like it's working a lot better than the generic was, and it's only the first day of taking it. Hopefully things will go better from this point on...
Not sure what to think of today, to be honest.
onder:
I hate having seizures, but it turns out they're not so bad to have when you're actually sitting in a room with your doctor...

For the longest time he was skeptical, since all my tests have been normal. However I was showing him my journal, talking to him about them, and talking to him about how my medicine (Generic for Keppra) was different because the pharmacy changed manufacturers, and then boom. Seizures showed up to say "hello" from out of nowhere.
Wound up having 5 partials, 2 partial-complex seizures, and an absence seizure. I didn't believe him about the absence seizure because I never knew I had them... I didn't realize anything had happened.
So he was taking notes and studying what was going on, and I was trying to explain to him what I was feeling and experiencing when I could. He decided that this was definitely E related seizure activity, and said likely the generic switch was metabolizing differently, so he put me on name-brand Keppra to control them better and I agreed to let him bump my dose up slightly.
I shook his hand, then left the room, turned back around to say "thank you" one more time, and went into a TC seizure.
I'm not entirely sure what this means, but he said once I'd come out of it and was functioning again that he "could tell from my movements and my eyes that the seizure was epileptic in origin". Again, I don't know what that means, but the guy has been a neurologist for something like 35 years so I'll trust him on his opinion. I certainly didn't see my eyes so I can't comment on what he meant by that. At the time, I didn't much care either.
So after causing quite a drama at the Neurologists office today, I finally got a diagnosis. I'm a little bit out of it, but I'm recovering faster than normal, and the medicine feels like it's working a lot better than the generic was, and it's only the first day of taking it. Hopefully things will go better from this point on...
Not sure what to think of today, to be honest.
