Got EEG results back

[Jessdenn82]

Well doctor’s office called today and MRI came back normal which is good however I was anticipating this. Also he let me know that EEG results came back and as I suspected they were abnormal they showed spikes in my temporal lobe. He is going to call the neuro doctor that I have an appointment with since I couldn’t get in until the 27th of January and see if he wants to increase the Keppra, since I am still having dizziness, migraines and vision changes with the sparkling in front of my eyes and other symptoms I have been experiencing. The doctor told me on the phone when I go to the neuro doctor he is pretty much going to diagnose me with epilepsy due to the EEG findings. Not really sure how I feel about this, part of me already knew this was going to be the outcome especially since after the test I felt like such crap and I knew that wasn’t normal. Part of me is like well at least know you know what is going on and you can get a plan of attack going and deal with it, and then part of me is mad as well. Because the doctor said there has been numerous signs and symptoms that I have had in the past years or so, and I do mean years but doctors never were really looking in the right direction to be able to diagnose me with epilepsy. He also said that thank god there were adults here Christmas eve to witness my seizure or I have may have gone a lot longer without being diagnosed. Because who knows how often I am actually having seizures since I do have young children he feels that I have probably had this a very long time and just no one has caught it I don’t know who or what to think/ feel right now. Guess I will get more info when I go to neuro dr but hey at least know my leave will be approved from work seeing what EEG showed

~~Jess:e:

 

[Nakamova]

Now that you've been officially diagnosed with epilepsy we can show you the secret CWE handshake...

I know it's tough to hear the diagnosis, no matter how much you were expecting it. But really, it's just putting a name on what you've been experiencing all along. Epilepsy just means you've had more than one seizure. It's a catch-all term for a wide variety of disorders, and it doesn't predict what treatment you will need, whether your symptoms will change, how people will see you, and most importantly, whether you will let it control your outlook on life. That last one's up to you.

 

[epileric]

Congrats Jess

I know you feel weird but it's great that you can now start doing what needs to be done to address this problem.

I'd get a list of questions ready for the neurologist.

 

[tam bam]

Jess,

Glad that you do know what exactly is going on now and are going to get the right help. Especially for your kids sake. I know what you mean about all the resentment about not being diagnosed any sooner. I too have had signs over many decades but no one could figure me out either. Heck I am still waiting to get to someone who knows frontal lobe epilepsy but it will one day come and it will one day come for you as well for your temporal lobe epilepsy. I am by all means not glad that you have epilepsy but glad that you have a diagnosis. Welcome to our family, Jess! Anytime you need us we are here for you.

tam bam

 

[Jessdenn82]

hey

Thanks Nakamova guess one of hardest things to deal with is the doctors keep telling me avoid stress, and don’t get sleep deprived cause that can induce more seizures however I have three boys and that in itself is stressful. All the fighting between them lol and just the daily stresses of so called life, and sleep that is a very tough issue since the birth of my third son who has a horrible sleep schedule there will be nights he goes to bed at 11pm and then other nights he is up and running around the house at 3 am other nights has actually been up to around 6 am when my husband is leaving for work I will be sitting on the couch and haven’t went to bed yet. The doctor did have me on ambien for a little while and then was also taking unisom for a little while which I know isn’t the greatest cause then you have such trouble falling asleep normally but the alternative is not sleeping at all which according to me isn’t an option but now do to the seizures I can’t take ambien and doctor said unisom is a catch 20/22 cause it can cause seizures due to the Benadryl in it but then not sleeping can induce them too. I am worried cause I am a nurse in the Emergency room which I love however even on an easy day is very stressful, I have never been very good with dealing with stress and worry about absolutely everything. Which is one of my flaws but hey everyone has some right I know I can really work anywhere being a nurse but I don’t want to I really like what I do and making a difference in my patients lives.

 

[Jessdenn82]

hey

And Ya it is very scary sometimes knowledge about things isn’t good if you know what I mean and I just have to keep reminding myself that the people that I see with epilepsy in the ER aren’t the norm I am seeing things in the extreme cases but think it is always in the back of your mind. And ya now looking back over the years there are many signs that I had and think some doctors defiantly thought well can’t find anything so it is in her head which I know now isn’t the case I have great doctors neurologist etc. and know who to see and who not too so that is a plus from working in the medical profession

 

[Nakamova]

Any chance you can incorporate just a half-hour of meditation into your day? It doesn't have to be anything Buddhist, just a half-hour with your eyes closed, maybe a peaceful soundtrack and focusing on your breathing.

Your youngest boy -- does he nap during the day, is that why his sleep schedule is off?

 

[foreverdark]

Jess, I am sorry to hear You have received this news. And as everyone has said, we will be here for you. Don't know what I can do for you but there are tons of people here who can shed light on some of the questions you will have and may not want to ask your doc or the neuro. The first few weeks are scary and then the next few are infuriating and then you realize, this isn't helping and things look a little brighter. Or at least it did for me. Yes I am still scared and angry. Talk! Talk to anyone who will listen. It will help.

The people here are awesome and will/can help you!!

 

[dfwtexas]

I know it may be hard to see the positive, but many on here don't get clear test results and have to struggle with no knowing what is going on. At least you can now move forward with a plan. Best of luck
jenn

 

[Meetz1064]

Wellll, it

does suck that you got the diagnosis of E,, but at least you DO have a definitive answer.

In regards to the sleep issue. Is there a way that your husband can help out more with getting your son to bed and getting up with him in the middle of the night?

Some other things to consider would be soothing CDs to help you relax to go to sleep, erbal teas, and perhaps some melatonin.

Take care!

Meetz
:rock:

 

[brain]

(((((((((( awwwwwww Hugs ))))))))))))))))

:rose:

Sorry to hear that your results had to come up to
confirm that you have Epilepsy; hopefully your
Neurologist can fine-tune everything and that
all will be well.