Grand mals?

[valeriedl]

Usually the seizures I have are partials. I'll sit and stare, try to talk, get up and walk or just do stupid things. However lately my husband said that I've been shaking during them.

I was laying on the bed, which was made, talking on the phone with my grandma when I had the seizure. She tried to keep me on the phone and called my husband, who was in another room in the house, on his cell to go into the bedroom and get me.

He brought me out into the living room after the seizure and told me that I was shaking during it. I didn't know that I had it.

I didn't realy know what he ment when he said shaking, I just thought I was moving an arm or leg. When I went into the bedroom that night the sheets on the bed were all over the place. It looked like the bed had already been slept in and I had a nightmare, so I must have been shaking pretty good.

I'm still havig partials but could these be grand mals that I'm having now too?

 

[mspang]

Do you go unconscious?

 

[valeriedl]

I didn't know I had the seizure so I'm assuming that I did go unconscious. I don't remember him bringing me into the living room and that's where I came completely out of it. I don't know that I've had alot of my partials either so don't know if that's considered going unconscious too.

 

[FFShawn]

Sounds similar to what I have experienced a few times myself, one of them the paramedics saw and thats when I found out it was a grand mal. And a few others have been witnessed by others as well and I never remember any part of it. Also, my muscles are so sore that it feels like I just worked out for eight hours straight!

Have you noticed any muscles unusually sore after it happens?

 

[Nakamova]

If you're conscious but have impaired awareness (think of sleepwalking, for example) then it's usually considered a complex partial seizure. If you're completely unconscious -- unresponsive, prone -- then it's more likely that it was a grand mal.

 

[mspang]

If your were to fall on the floor then that would be considered a grand mal. Like I used too.

 

[Mrs.Hickman]

i have grand mal seizures. and was wondering if anyone could help me out.. im taken keppra at the moment and dose anyone know of any other good meds that actually work? ive been having a lot of seizures lately and i really would love to find the right meds.

 

[valeriedl]

If your were to fall on the floor then that would be considered a grand mal. Like I used too.

I have had a few grand mals when I did fall down during them. But I wasn't standing up when I had these ones that I was shaking during. The last one that I had I was laying in the bed and the others I was either sitting or laying on the couch.

 

[valeriedl]

i have grand mal seizures. and was wondering if anyone could help me out.. im taken keppra at the moment and dose anyone know of any other good meds that actually work? ive been having a lot of seizures lately and i really would love to find the right meds.

With meds alot of the time it's trial and error. Just because it works good for someone else doesn't mean it's going to work good for you.

It took a while for me to find a combo of meds that worked pretty good for me. I'm still having seizures but they aren't as bad and not as frequent when they were in the begining. However now I seem to be having more seizures and some of them might be grand mals, which I used to only have one or two of a year instead of more than once a month like now.

I have a feeling that we are going to start messing around with my meds again - Yea :soap:

 

[Mrs.Hickman]

Ive been on almost every anti-seizure med that there is. and i even went to the mayo hospital in az. and they told me i could have surgery but its all over my brain.. which sucks.. but ahhh its getting so annoying that i still havent found anything. =-/ do you know of any new med thats out?

 

[valeriedl]

Ive been on almost every anti-seizure med that there is. and i even went to the mayo hospital in az. and they told me i could have surgery but its all over my brain.. which sucks.. but ahhh its getting so annoying that i still havent found anything. =-/ do you know of any new med thats out?

This sounds like me. All I was able to do was keep trying different meds and find out which ones worked for me. It's not fun.

 

[valeriedl]

I got a VNS implant Mrs. Hickman and its helped me alot with my seizures. It sort of works like a pacemaker for your brain. I still take medicine and I have seizures, but the seizures aren't as bad and as frequent. If you want to know more about it let me know.

 

[Mrs.Hickman]

oo! thank you valeried! =D yeah i just may look into that. are there any bad side effects when you have the VNS? shocked i havent heard of it before. =-0 at the moment im only on keppra and it sucks.. i havent stopped twitching it sucks. i hate that feeling. =-/

 

[Cint]

I got a VNS implant Mrs. Hickman and its helped me alot with my seizures. It sort of works like a pacemaker for your brain. I still take medicine and I have seizures, but the seizures aren't as bad and as frequent. If you want to know more about it let me know.

I, too, have the VNS and it has helped considerably with seizures. But it was a last resort for me. I've tried numerous meds, had a temporal lobectomy and still have seizures, although not as bad as they once were. After my lobectomy is when my TC seizures (grand mal) increased and now with the VNS I haven't had a TC since 2005. I had a CP back in December and totaled my car. I am waiting to hear from my neurosurgeon because it is time for a new battery for my VNS. I also take meds along with it.

 

[valeriedl]

My voice changed slightly and another side effect, if you even want to call it that, is you will have a little bit of a tickle in your throat when you get it and when you have it adjusted. But that goes away after a day or two.

It takes a little while to get it adjusted to the right strength for you. It took about a year to get it working at the right strenght for me.

It has a battery that has to be changed every so many years. I can't remember how long it lasts before it needs changing, I think it's somewere between 7 and 10 years.

Another thing is that you can't have an MRI with it.

 

[qtowngirl]

Another thing is that you can't have an MRI with it.

whaaaaaat?!?! how do they do routine testing then? what if you developed a lesion? there's no other way of finding out, an eeg sure as hell isn't going to show it! well there's one reason in the shitter for my 'cons' list. that's really too bad valeried, that would scare me greatly.

 

[Cint]

whaaaaaat?!?! how do they do routine testing then? what if you developed a lesion? there's no other way of finding out, an eeg sure as hell isn't going to show it! well there's one reason in the shitter for my 'cons' list. that's really too bad valeried, that would scare me greatly.

One can have an MRI if you have the VNS, but the VNS has to be turned off in order to do so. I've had it done. And as far as the battery, with the new VNS, they last from 8-10 years. I've had this battery for a bit over 10 years and will be having it replaced ASAP. The neurosurgeon told me the newer stimulators are much smaller than the first two I had. Plus I won't have to be "put under" fully. They can do it with a local anesthesia now. In and out of the hospital in one day.

 

[mypath2281976]

Did you get very tired and sore after your husband got you? If so, that's a grand mal. I have grand mal and partials.

 

[Mrs.Hickman]

ahh okay thank you again for all your guys help. ill look into that soon. ive gotta call my doctor for new meds soon anyways i might just ask him about it. and see what he thinks. hope everyone on here is doing well. xxx

 

[valeriedl]

One can have an MRI if you have the VNS, but the VNS has to be turned off in order to do so.

I'm sorry I didn't know that or if I did I forgot, memory's not that great any more.