Had 1st seizure this evening since March.

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Belinda5000

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I went a month sz free so I don't know why I even try? I had 2 in March and 11 in February my seizures will never stop.I know that much anyway. If I hadn't been in this crowd it wouldn't have happened most likely.I hear people say if you know your triggers stay away from them; well actualy it's not that easy unless I changed my entire life.:twocents:
 
I know I hate it when I hear "If we wouldn't have went/done whatever you wouldn't have had that seizure."

What am I suppose to? Sit in a dark room with the windows shut and no noise forever?
 
I think that bull if going have one you will.Obviously triggers strob lighting I stay away from but you got live.Life is about taking chances I mean today thousands will have Sz but I bet more perfect healthy people will get run over and killed.
you may have fit you prone to it but don't mean you will
 
There are some people that don't think I should go out in public by myself at all; that I need someone with me at all times because I'm not controlled and what kind of life is that actually? I plan to go to pick up something for my husband to day while he is at work a short walk up the highway I live on and it would freak some ppl out I would do that.
 
Belinda it does suck I just had two grand mal seizures last weekend despite all my medication and a doctor who doesn't seem to care. Just keep on living
 
Hi Belinda,
I'm sorry to hear that you had another seizure. If I may ask have you ever noticed a pattern in your seizures where you will have more at certain times of the year? I always have more in March or April and less in Jan or Feb. If you get a warning that you are going to have a seizure try tightening up all the muscles in your body and make your hands into tight fists for a few seconds. A neuro I had back yrs. ago taught me this and it has stopped many of my seizures. I wish you only the best of luck and May God Bless You!

Sue
 
Sue,
I don't get auras very often but when I do I use bio feedback that sometimes controls my seizures from happening.
 
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