Hi there, :e:
I got epilepsy from a bad hit to my head years ago. I have been on Primidone and Dilantin for many years. Since there is a lack of Primidone right now, my DH and I made an appointment with a neurologist.
The neurologist says that if my EEG and MRI come back clean, that he suggests I slowly wean off my meds, to see if I need them or not.
Has anyone done this, or does anyone know of anyone who has successfully done this, and never had more seizures?
What would happen if I slowly was weaned off my meds, but had a seizure and needed them again. Would they work as before or would I need to have a stronger dose, or another med as well?
What other withdrawal symptoms did you or someone you know have?
I really would like to make an infomed decison.
Thank you so much,
lavatera
I got epilepsy from a bad hit to my head years ago. I have been on Primidone and Dilantin for many years. Since there is a lack of Primidone right now, my DH and I made an appointment with a neurologist.
The neurologist says that if my EEG and MRI come back clean, that he suggests I slowly wean off my meds, to see if I need them or not.
Has anyone done this, or does anyone know of anyone who has successfully done this, and never had more seizures?
What would happen if I slowly was weaned off my meds, but had a seizure and needed them again. Would they work as before or would I need to have a stronger dose, or another med as well?
What other withdrawal symptoms did you or someone you know have?
I really would like to make an infomed decison.
Thank you so much,
lavatera