Has anyone had this happen?

[epileric]

I was in a restaurant today that had a jukebox that was playing all the old early & mid 70's rock that I grew up on. The waitress cleared my dishes & I wanted to ask her if she knew who put all those songs on (they must be about my age) but my mind froze & I couldn't find the words to express what I wanted to know. After a sz I think I can talk but can't. Here my mind went blank for a sec & I couldn't put my thoughts in order to get the words out. It came out phrased sort of funny & not how I wanted it to but she laughed when I said I was asking because it was probably someone my age.

I've had a few incidents like that where I wasn't having a sz but still my mind goes blank for a sec then I'm a bit confused to put the thoughts of what I was thinking back together. It doesn't happen often so I keep ignoring it but I have to wonder if this has happened to anyone else? I"m on Tegretol & being weened off of Mysoline but don't know if it might be a side-effect.

 

[speber]

I've had some 'freezing spells'...

...and it sounds VERY close, but a little different maybe.

I'll be doing something like typing at the keyboard, and I'll just FREEZE!...............still looking at whatever I'm looking at...still in some pose.....no change in how I feel, but TOTALLY unable to move except for rudamentary things such as breathing.

My wife Renee has witnessed two such episodes and the longest has lasted over a minute and a half!

I would like to chalk this up to Keppra side effects (when I was on it since I haven't had anymore since) but that's REALLY not the feeling I get....I think it's all me.........some kind of absence seizing.

Peace
Spencer

 

[Bernard]

Sounds like the absence seizures that Stacy used to have. It frequently happened to her while talking in mid-sentence.

 

[Georgiagirl88]

I seem to get that at times as well. I have a thought in my head and just either lose it or can't quite process it or say it. Or it'll come out weird. I also have little (stops) where I just sort of pause for 20-30 secs. in the middle of conversation and then come back. Sometimes when I have my nocturnal seizures I freeze up and feel paralyzed and cannot speak for a moment or so.

 

[Bee91]

Sometimes after I have seizures, I have had expressive aphasia-where I knew what I want to say, but I just couldn't spit it out. I could see the words in my head, but I can't get them from my head to my mouth.

Other times before and for about a half and hour after a seizure, I have a problem where my words will come out jumbled. I will be able to understand what people are saying to me, but I just can't talk back without it sounding like I am talking in a made-up language.

Does either of these sound like what you experienced?

 

[Georgiagirl88]

Yes, for me after/during my weird seizures I want to talk and just can't or feel like I am making zero sense...very confused with my words. Mine aren't necessarily jumbled like a weird language, just not making real sense and somewhat confused I think. I have the thoughts in my head...because I know what is going on..but can't express it to my husband.

 

[epileric]

Me too

I have the same thing happen after a larger seizure. I know what I want to say but I can't think to speak (or it comes out jumbled) though like you guys I can understand other people.

What happened yesterday was different though in that I wasn't aware of having had a seizure, it felt like it was just my mental abilities though the confusion was the same as after a seizure.

Bernard, when Stacy had those absence seizures was she aware that she was having a seizure afterwards? I didn't feel like I had one though I"m not sure what to think.

 

[Georgiagirl88]

When I have the small "checkouts" during the day..I can sort of feel them. I know they are happening to me..but I just stare and I will no longer respond if I am in a conversation or seem to be out of it. Yet, I feel it. Hard to explain. I used to think it was because I was so tired before I was correctly dxed with seizures. Yet I don't seem to have control over when I do it.

 

[Bernard]

Bernard, when Stacy had those absence seizures was she aware that she was having a seizure afterwards?

She could tell that she had had one only by indirect evidence - the strange looks on people's faces looking at her expectantly like, "yeah? get on with it...". She had no conscious awareness of the seizures.

 

[Birdbomb]

Do you take Dilantin?

It causes weird aphasia things.
But then as we age we all have brain farts too.
Just be talking and all of a sudden all thoughts and subject goes on vacation. Then you're left wondering what in the hell were you taling about.

 

[epileric]

I know those looks well

She could tell that she had had one only by indirect evidence - the strange looks on people's faces looking at her expectantly like, "yeah? get on with it...". She had no conscious awareness of the seizures.

though often I thought they were for what I was saying, maybe I'm zoning out & not realizing it. I've noticed in my old age I've become more aware of peoples body language because of it.

I haven't been on Dilantin since I was a kid but I still get brain farts (more than I care to lol) but it was the confusion of not knowing how to phrase what I wanted to say that was the same type of confusion after a sz that has me wondering about it.

 

[brain]

I get "Blank" .... like you've come
to a dead-end.

Whether I was on AED's or not. I
still get it. My Doctors have seen it,
the ER Personnel have witnessed it,
my family members have experienced
it, my friends, neighbors, son's friends
all have encountered it ...

It's like:

KNOCK ... KNOCK ...

"HELLO??? ANYONE HOME???"

But from my end - I have no memory
or knowledge of any of this happening,
none of this at all!

I do know now - because the Doctors
and Nurses who all have witnessed it
have described it all to me; and I know
exactly what happens to me. And I'm
amazed because it only happens for a
mere few seconds ... however, it can
happen again and again and again.

Now on my end ... this is ME POSTING:
There's been MANY times I would be
smacked by it, and then suddenly
'lost my train of thought' ... Doctors
have told me I never lost my train of
thought, I actually had a seizure; the
memory of what I had in mind went
with it. Just like that ::: snap of
finger :::

So when people remind me of where
I left off; sometimes I can remember,
many times I cannot! It can be down-
right frustrating and not only that,
very embarrassing!

It's like

Yadda, yadda, yadda, yadda, (seizure)
Ummm ... where was I?

 

[Bernard]

Sharon, that's exactly what Stacy was experiencing. She hasn't had one of those in over a decade now since she finished her first ~5 months of EEG neurofeedback.

 

[wvueers]

I have been having the same kind of problems. I will be fine then out of nowhere it hits me, kind of a stunned feeling. It will last for about 10 seconds. My speech will be slurred for about the same amout of time. My jaw will pull to the right. About one month ago i had jumbled words for about eight hours. At least i was home all day. I have been doing this at least once a day for about 30 days.

 

[Tillikumtrainer]

Well your not alone.

I have had many a frozen moment (you go into a blank stare and just cant think or say anything..) it takes a moment to regain everything back. My husband knows about these, he tries to talk to me, when i go through this, i dunno if to make him feel better or to remind me or what. It kinda sucks especially when i get this at work.. thankfully my boss, coworkers and most clients understand what is happening to me. So if something like this happens they step up and take over while i take a moment to myself after it happens.

im just glad i never *knock on wood* had a seizure at work.

 

[wvueers]

That's exactly what i do. I just step back for a few seconds, and return to what i was doing. I am a dialysis tech so i really have to be careful. Especially when i am sticking needles iinto patients arms. We think we have problems, you should see what a dialysis patient has to go through. They have only certain things they can eat, very little to drink. Diabetes and high blood pressure are the two leading causes of kidney failure. Please, if anyone of my epi friend's have any of these problems please take care of yourself.

 

[skillefer]

Been staring off into space more frequently the last couple of months. Usually, when I'm tired. Totally concious of what is going on....just kinda out there. *shrug* As for seizures, I've had them at work. My coworkers were fantastic.