have u ever been ashmed ur epilepsy

Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!

I only married once , not 2,3,4 times and I've been married be 23 years in June.
I've over come a lot of health problems and I only finished high school which doesn't say much.

All that says a lot about you Belinda! For one thing lots of marriages do not last as long as yours has, and secondly to have completed high school with a severe seizure disorder is a huge accomplishment.
 
Thanks for this thread and to the folks on the forum. I had a bad experience, last week, with someone that I'd thought of as a friend now avoiding me. Once I'd told her about the seizures and that I've got epilepsy, it was like a curtain came over her face. I couldn't believe how quickly she got away from me. Now, this isn't a close friend, but it still hurt. I felt ashamed of myself for having seizures, at first. Then I gave my head a shake and started reading about prejudice.

I talked to my husband and adult son and decided to do something pretty drastic. I came out as a person with epilepsy on my facebook page, for all my friends, relatives and acquaintances to see. I have nothing to be ashamed of - I have a medical illness that I'd like my friends' support to help me cope with. This way, they'll know what I really have (so gossip can be kept down) and anyone who's afraid of folks who have a seizure disorder is forewarned and can stay away. So far, I've received only supportive messages on my fb page.
 
Last edited:
Not ashamed just extreamly hurt or perplexed I wished kept quiet with family.i over head one them say that women like me should not have children that resulted in me not tlalking for 5 years
 
Showing of Inner Strength

Alana,
You showed a great amount of strength when you put that statement on your Facebook page! Anyone who refuses to accept you having E is NOT somebody who you need in your life! That type of person could only drag you down with their lack of understanding. Negativity is the LAST thing any person who has E needs!
After people who know you see that post you will soon see who is a 'true' friend or supporter. Any person that makes a negative comment about that post are just showing how you could never trust them again!

Great Decision
ACsHuman
 
Last edited:
Back
Top Bottom