Having a bad few days

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EllyPaddington

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As some of you might know I haven't been diagnosed with epilepsy yet but I am going to the neurologist soon to get tested for it. The past few days have been really bad, for both the symptoms I get and emotionally.

In regards to the symptoms, my arms jerk about without me being able to control them and I apparently 'space out' as my mum calls it, where my arms and head go limp and I don't remember any of it. She says it is almost like I switch off. For the past few days they have been bad, with my arms happening 5 times a day in clusters of lots and 'spacing out' happening lots of times a day. Before they only happened a few times a day

I have also become really emotional because at home it's like my independence has been taken away. I can't shower on my own or make myself dinner in case I burn myself or the house. My family have become protective and the doctor said until I am diagnosed I can't shower alone or do much on my own. I was just wondering how can I become more independent without my family freaking out because I am on my own?

Any kind words would be lovely
 
So sorry Elly, hugs to you. It can be tough when the symptoms are new and distressing. Eventually, when you have a better sense of what's going on, you and your family will be able to figure out the right balance between their overprotectiveness and your need for independence. It will happen, but for now you need to be a little patient.

(I remember when there was worry about me showering alone -- I asked if the doc could write a prescription for a young hunky man to shower with me. For safety's sake, y'know...)

I hope your appointment with the neuro is soon. In the meantime you might try a magnesium supplement. Magnesium is good for the brain, but it also plays a big role in relieving muscle tension -- including the tension associated with jerks, twitches and cramps.
 
Hehe I might have to ask for a hunky guy to come with me in the shower too! Thank you very much for this, it made me giggle :) I guess soon my family will change, I live with my grandparents as well as my mum so they're practically spoon feeding me. You're right I time they will come about, thank you :)
 
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