having fun despite my Epilepsy

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marlena23

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There are not many things I do for myself. As a mother of 3 kids I usually don't have the time, and with fibromyalgia and epilepsy I usually don't take the risk of feeling crappy the next day, but last night was certainly worth it.
I went to see NKOTBSB in concert. For those of you who don't know, new kids on the block and the backstreet boys teamed up for a tour. The show was great and the guys in both groups are so nice, but today I'm paying the price. I have a migraine and small seizures, mainly pauses and twinkling lights out of the corner of my eyes. I did get numbness in my hands and feet during the show but I attributeed it to the strobe lights which I was trying NOT to focus on.
The thing is I really don't think I should have to deprive myself of something I love just because it could trigger a seizure. E has already effected my life in so many ways, but this isn't going to be one of them. I deserve to have fun.
So...here's my question...is there anything you do for fun despite your E?
 
I started swimming again. I love it. Doc says don't do it, but I'm doing it.

I had a half glass of champaign with one of my friends this week. So wonderful in the moment. Paid big time later.
 
Living dangerously kiddo. :) Hope you're feeling okay.
 
@ Endless...I'm so glad you have something that you can enjoy. I know its tough going against doc orders, but some times we need to do things for ourselves that make us feel good. Something that makes us feel "normal", whatever that is ;)
@ Rae every one cheats on their diet every now and again.;)
 
Worked more on my pet project, as it's coming to be known as downtown, lobbying our town board to reinstate our Constable position (basically a non-sworn law enforcement officer). -Which, if successful, I'm definitely running for it next election!
 
I know alot of time that I do something BIG, like going to a concert and dacning around like a lunitic (don't know if you did that though or not), I'm prone to have a seizure within the next few days. I think I just over exert myself and that's why it happens.

I'm going to an amusement park next week with my husband so I'm going to have to wait and see what happens when I get home.
 
I now live by myself and take trips on my own. I jsut returned from a trip to Reno to see my sis and flew on my own. But actually, it wasn't that big of a deal to me 'cause I used to be married to a pilot and was in the airline industry myself before seizures. When my kids were young, my seizures weren't controlled like they are now, and we used to fly a lot without help. I only had 1 CP seizure in the restroom in Calgary once. So far, none on the plane. Two summers ago, my other sis and I went to an outdoor concert up in Aspen and could smell the "pot" that people were smoking and the flashing lights were all over, but that didn't bother me, either. So, yes, I now try to have fun despite my epilepsy since I feel I've already been through hell and back.
 
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