Headaches - have you ever?

[Katiered]

onder:Just had a thought today when I touched my head and had that familiar pain, that maybe it's connected! I'd written it off that I was insane since my doctor had just ignored me when I brought it up a few months before my seizures worsened (and were then diagnosed).

Do you ever get headaches that are almost on the scalp, and radiate down towards your brain a little bit (just very quickly, and sharply)? Ladies - it's like you've worn your ponytail too tight for too long, almost.. Not quite like that, but it's the closest I can describe. It hurts almost all of the time, not horribly, but enough that I try to not touch my head.

My doctor ignored it, but then again he also ignored my complaints that I suddenly couldn't remember words like spoon, or names of family members and close friends so I'm not sure if it's connected! Just thought I'd see if any of you guys have anything similar!

Hope you're all having a good day! Thanks as always for your experiences!

 

[Sandie]

Never had that Katie but I do get a similar thing behind my right eye. No clues to what it is and nothing wrong with my vision. (well nothing except I'm blind as a bat without my glasses. )but it is a similar type of pain that you are describing. Sometimes I feel like I want to push on my eye really hard to make it stop. No clues to it so I put it down to maybe migraine. If you are constantly forgetting certain words I would have a chat to your neurologist. It could be E. related. Take care.

 

[Katiered]

Thanks for your response!

As far as your eye pain - I've had migraines since I was about 5 or 6 and they're always behind my eyes. When I get them that's how I feel exactly! The only way I get any relief is to push (way too) hard on my eyes. Grosses my boyfriend out to no end, but makes me feel mildly better for a moment. Do you get these often? Have you talked to your neurologist about them? I just ask because mine said that people with migraines have a higher likelihood of epilepsy than those without, so they think there may be some weird link. Brains are incredible. And weird.

 

[Rocky Mountain Gemini]

Hey Katie! I've also had memory issues from the grand mal seizures I've had, and it is also one of the side effects of the meds I take, dilantin. Just have to learn to live with it I guess. It was a bit disturbing at first, so it helps to have a sense of humor about it and my gf helps me with that.

 

[Katiered]

Lol it's good that your girlfriend helps out! My boyfriend fills in as my memory for me too! I have had gaps long enough that those are frustrating, but expected.. The words missing mid sentence are embarrassing but now that I'm being more honest about my diagnosis it's much easier to have a sense if humor about it, that's for sure! And, I thankfully am reducing to stop the (dope-amax) topamax I've been on for a few months!

Do they expect that that side effect will reduce for you overtime with the Dilantin, or just a necessary evil to avoid the joys of seizures?

 

[Sandie]

Actually, I haven't talked to the neurologist about the eye pain because your post has only just made me think about it as far as the Epilepsy is concerned. Another one on the 'to do' list. I do know what you mean about wanting to push on your eye way too hard. Maybe there is a connection. This is all new to me and I am still trying to figure out what is E. related and what isn't. Take care.

 

[Maisy]

Hey, well i was getting very bad seizures 30+ a week it took me too be admitted too a pscyiatric unit with severe depression and the doctor there too say i had a sinus infection 10 day course of strong antibiotics, now im unlucky too have 1 seizure a week!!, the headaches have calmed down alot.

 

[Hand of Blood]

my headaches are always on the left side of my head beside my eyes

 

[Crash]

Thanks for your response!

As far as your eye pain - I've had migraines since I was about 5 or 6 and they're always behind my eyes. When I get them that's how I feel exactly! The only way I get any relief is to push (way too) hard on my eyes. Grosses my boyfriend out to no end, but makes me feel mildly better for a moment. Do you get these often? Have you talked to your neurologist about them? I just ask because mine said that people with migraines have a higher likelihood of epilepsy than those without, so they think there may be some weird link. Brains are incredible. And weird.

I find this post extremely intresting,i had terrible migraines as a child,and so did my father.He reckons i got the next notch up in being Epilepsy.I discussed this with someone else on the forum who suffered the same way(i cant remember who).But i had never heard off a neuro mention the link between migraines and epilepsy.I sometimes get chronic migraines now during absence seizures,lasting ten,twelve hours long.Got a docs appointment this afternoon,guess what he's getting asked,and the same goes for my neuro when i see her next.Thank you very much again,Neil

 

[Cint]

.But i had never heard off a neuro mention the link between migraines and epilepsy.I sometimes get chronic migraines now during absence seizures,lasting ten,twelve hours long.

Well, now you can show your neuro this little website. There is a connection between migraines and epilepsy. I used to get severe migraines all the time, especially after a TC, sometimes a day or two before.

http://professionals.epilepsy.com/wi/print_section.php?section=migraine#migraine_mes

Migraine and epilepsy are highly comorbid.

Individuals with one disorder are at least twice as likely to have the other.1,4–7 Comorbid disease presents challenges in both differential diagnosis and concomitant diagnosis.8 When diseases are comorbid, the principle of diagnostic parsimony does not apply. Individuals with one disorder are more likely, not less likely, to have the other.

In the Epilepsy Family Study, among probands with epilepsy who were classified as having migraine on the basis of their self-reported symptoms, only 44% reported physician-diagnosed migraine.91 In the general population, 29% of men and 40% of women with migraine reported a medical diagnosis.12 The proportion of probands reporting a physician’s diagnosis of migraine was surprisingly low, given that all were already being treated for epilepsy.

Why is the comorbidity of migraine and epilepsy not recognized? Epilepsy may be viewed as a more serious disorder than migraine. As a result, the migrainous symptoms of patients with a diagnosis of epilepsy may have been overlooked or attributed to the seizure disorder.

 

[Katiered]

Thanks for the article Cint!

And Crash - I hope you'll let us know what your neurologist says! I'd love more info, mine didn't get too involved in the conversation with me. Hope you have a good apt.!

 

[Crash]

Thanks for the article Cint!

And Crash - I hope you'll let us know what your neurologist says! I'd love more info, mine didn't get too involved in the conversation with me. Hope you have a good apt.!

Hmmmmm,maybe Katiered although i might be behind bars for ringing her neckfft:

 

[Katiered]

Lol at least arrange bail before your appointment then Neil! Sorry, missed that you had GP today, neurologist later!

 

[Crash]

Good point Katirered,bail or il'l tell you my secret location when i go on the run!

 

[Katiered]

Perfect! We'd better pick up disposable phones though. I think they've wised up to the whole Internet thing

 

[Crash]

Ha what a cunning plan,they will never find out our dastardly ways,hahahahahaha!

 

[qtowngirl]

onder:Just had a thought today when I touched my head and had that familiar pain, that maybe it's connected! I'd written it off that I was insane since my doctor had just ignored me when I brought it up a few months before my seizures worsened (and were then diagnosed).

Do you ever get headaches that are almost on the scalp, and radiate down towards your brain a little bit (just very quickly, and sharply)? Ladies - it's like you've worn your ponytail too tight for too long, almost.. Not quite like that, but it's the closest I can describe. It hurts almost all of the time, not horribly, but enough that I try to not touch my head.

know exactly what you're referring to, and all i can really add is that i asked my neuro about this years ago as i started noticing it not long after diagnosis, and he said that type of pain (scalp pain) and seizures/E are not related.