Hello All, I would like some input on this because it's stange to me, but perhaps not strange for epilepsy since we know many strange things can happen with us. So my husband and me have this on going battle (it's a fun battle : ) because he snores and for the past year he always tells me how funny I am when I talk in my sleep. He says that I will scream, "Shut up" or "stop snoring" and he'll be up watching T.V. and I'll literally wake up and tell him, "You must have fell asleep because I heard you snoring!" and of course he insists he wasn't sleeping and wasn't snoring. O.K. yesterday I woke up to my 4 year old in my room with this toy that made this "clicking" type noise and I told her to please stop since it was annoying and woke me up. She leaves the room. The next thing I know (I don't know how much time passed) I heard the clicking noise again and was saying "stop with that clicking toy" and it wouldn't stop but the clicking noise soon became faint and I opened my eyes to tell my daughter to stop and she wasn't there and I could still hear it and assumed she was in the closet hiding with it since I could hear it but faintly and I got up and opened the closet door and to my surprise she wasn't in there and she was not in the room and I could still hear the faint clicking. I shook my head and went back to bed not thinking anything of it until later. What was that all about??? Sometimes sounds are making inprints in my brain and I'm hearing it but nobody is there! Thankfully it's contained in my sleep (early morning hours which is when my seizures peak) but this is reminding me of scizofrenia (I know I spelled it wrong) and from what I understand I'm not always seizing, if ever, when this happens. I know coming out of REM is a problem for me but this whole sound thing has me baffled. I think to myself...I don't want to start questioning if I'm really hearing something! I'm also incredibly tired of my thoughts! I have so many thoughts in regards to spirituality / religion (which I know isn't uncommon for temporal lobe epilepsy) but sometimes I feel like I'm going to go insane and now this sound thing is yet another crazy thing. Meanwhile my seizures, from what I know, are for the most part under control and now I just feel like I'm going to go crazy. I don't need to unlock the mystery to life!!! I think we spoke of this before and I don't choose these crazy thoughts they come to me. sad and tired already.
Hearing things?
- Thread starter KelVarQ
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Chel
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Hi KelVarQ
Before my sps were more under control (they're not completely), I used to hear things a lot. Mostly I thought the radio or television were on, or there was someone outside my house or office ("hearing voices" - spooky). It was more like the radio was down low, because the sound was indistinct. I also "heard" white noise at various levels (usually at the same level as I saw white noise), explosions to go with the visual fireworks, and percussive sounds. Not a clicking sound like you've described, but other drumming sounds.
At their worst, from these sps, I genuinely thought I was going insane.
Meanwhile, there are many sounds which drive me to distraction (again, percussive sounds), and can be seizure triggers if I'm not careful. But that's not really what you're asking about. I wouldn't be surprised if what you're experiencing are sps.
Before my sps were more under control (they're not completely), I used to hear things a lot. Mostly I thought the radio or television were on, or there was someone outside my house or office ("hearing voices" - spooky). It was more like the radio was down low, because the sound was indistinct. I also "heard" white noise at various levels (usually at the same level as I saw white noise), explosions to go with the visual fireworks, and percussive sounds. Not a clicking sound like you've described, but other drumming sounds.
At their worst, from these sps, I genuinely thought I was going insane.
Meanwhile, there are many sounds which drive me to distraction (again, percussive sounds), and can be seizure triggers if I'm not careful. But that's not really what you're asking about. I wouldn't be surprised if what you're experiencing are sps.
I always heard 2 men having a disagreement.loudly,but not a full out argument and it would be in different rooms of my house or outside and i could hear it through closed doors and windows.could never make out the actual words,but somehow I knew they were words if that makes any sense.I just told people that it was the 2 men that have comitted suicide there over the last 40 yrs and who knows? maybe it is?But I was reading about this theory that this doc had that was called forced normalization.google that and see if thats any kind of match for you.
Endless
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Could be a seizure, could be a sleep disorder. Have you ever seen a sleep doc? Do you hear things when you aren't falling asleep or waking up?
I've heard people say things when they didn't say anything at all. Different but kind of the same. Mine was a simple partial seizure.
I've heard people say things when they didn't say anything at all. Different but kind of the same. Mine was a simple partial seizure.
I've noticed that just before a seizure, I have extremely sensitive hearing. It's always very sensitive (hearing lights buzzing, or knowing someone's on the other side of the house, because I can hear their footsteps/breathing), but even more so just before a seizure(hearing a telephone ring from 3 streets over, or a car door closing from 2 st. over (while inside the house). Sometimes, I thought I was just hearing things that weren't there, then realized they were, just quite a ways away.
I hear things all day, though, that aren't there. It can be very frustrating! Usually it's just a bump or scuffle outside my bedroom window(like someone trying to sneak around) or a car door closing sound or the front/back door closing lightly. I just chalk it up to the weird unexplainable stuff that happens with epilepsy. I've stopped trying to make sense of it. Though that may not be the best idea, at least it gives me a reason for this stuff happening besides me being crazy.
On a side note, let your neuro know about your brain running in overdrive and overthinking/analyzing everything, whether it be emotionally, spiritually, socially, everything-ally. I've had some meds that did that. He'll know what you mean.
I hear things all day, though, that aren't there. It can be very frustrating! Usually it's just a bump or scuffle outside my bedroom window(like someone trying to sneak around) or a car door closing sound or the front/back door closing lightly. I just chalk it up to the weird unexplainable stuff that happens with epilepsy. I've stopped trying to make sense of it. Though that may not be the best idea, at least it gives me a reason for this stuff happening besides me being crazy.
On a side note, let your neuro know about your brain running in overdrive and overthinking/analyzing everything, whether it be emotionally, spiritually, socially, everything-ally. I've had some meds that did that. He'll know what you mean.
Mine was overactive smells-either the smells werent really there or they were just magnified a thousand times--it was awful destroying things like carpet furniture and clothes -got to the point i didnt even try washing or spraying it-just opened a bottle of my favorite smelling cleaner and soaked it down
SevenC
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Like a few people mentioned, I've noticed that as part of my "aura". I hear voices and things right before a seizure (which is actually rather helpful, I know it's coming, sometimes I even have enough time to grab a friend or family member's arm before I'm gone)
My neurologist told me not to worry about sounds/voices etc. He said the medication can cause that sometimes as well. He just mentioned if I was feeling super depressed or wanting to hurt myself to please get to the doctor.
I am having issues with, as another user said, thinking I head the TV/radio on, then going around the house and it isn't.
I'm even seeing things in my peripheral vision.
Like someone above said, it's spooky! But I'm chalking it up to the medication not the health condition. I've read many people on AEs have hallucinations. Mine aren't bad enough to interfere with my daily life, I'd just like the drowsiness to go away.
My neurologist told me not to worry about sounds/voices etc. He said the medication can cause that sometimes as well. He just mentioned if I was feeling super depressed or wanting to hurt myself to please get to the doctor.
I am having issues with, as another user said, thinking I head the TV/radio on, then going around the house and it isn't.
I'm even seeing things in my peripheral vision.
Like someone above said, it's spooky! But I'm chalking it up to the medication not the health condition. I've read many people on AEs have hallucinations. Mine aren't bad enough to interfere with my daily life, I'd just like the drowsiness to go away.
drowsiness is terrible and the visual and auditory hallucinations dont interfere--the smell thing causes me to vomit and feel sick and ruin things and drives me nuts but still bearable,but its just the general way I feel about life that sucks--its not depression--not so much that as I just cant find happiness-for years now--I just want to be happy and im afraid i never will again.Its a struggle just to force myself to colour the easter eggs or wrap the gifts or any of lifes daily things with kids that are supposed to be happy-I can barely do these things let alone find any joy in it and its been years.ive done the psych route and the med route and all that to no avail-it JUST IS!!
Ann T.
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Hi, Everyone:
I, too, have weird & not-so-weird auditory sensations signaling that seizures are on my horizon. They are called reflex seizures. Mine, specifically, is the song by the 1970's group Kansas: "Carry on my wayward son/There will be peace when you are done/Lay your weary head to rest/Don't you cry no more..." I can't tell you how this was driving me to distraction. BUT, since my neurologist friend explained & gave a name to this seizure, I haven't had one since. Hope this explanation helps. Take care!
I, too, have weird & not-so-weird auditory sensations signaling that seizures are on my horizon. They are called reflex seizures. Mine, specifically, is the song by the 1970's group Kansas: "Carry on my wayward son/There will be peace when you are done/Lay your weary head to rest/Don't you cry no more..." I can't tell you how this was driving me to distraction. BUT, since my neurologist friend explained & gave a name to this seizure, I haven't had one since. Hope this explanation helps. Take care!