Err ... I seized!
TO TRANSLATE MY POST:
*sigh*
To explain it all:
Everything was set up and arranged for me to go, but there
were transportation issues that were going unresolved.
Moreover, my mother decided to pitch in and gave me some
money to cover the expenses because CC had exhausted
every option out there, for there were no Agencies or any
as sistance available that would help me with the transportation
and since I'm also under Medicaid, I qualify for the Medicaid
transportation services in my State ~ however, never having
used their services before, I just was not able to get a hold of
them at all!
Because of lack of transportation being the issue, CC canceled
it due to health and safety issues, and left it on my answering
machine while my mother took me to the store so I can pick up
some small stuff for the short trip to CC, and upon our arrival
back - we get this message. My son and my mom were very
upset, with my son being furious!
While I was trying to get a hold of CC, my mom had said she
would GO with me, since they stated they did not want me
traveling alone - CC never gave me the opportunity or chance
to respond at all to get that resolved. It wasn't a fair game there
considering my tickets are NOW non-refundable and everything
had all been set up and all neighbors had been alerted and I
had just gotten food and everything for my son during my
departure so he can handle himself while I'm gone (he was in
a very bad MVA accident so the neighbors will be helping him
during my absence). My son went out to give out this news.
I spent hours trying to get through CC and couldn't, ended up
phoning my Primary's Office to relay the news before they closed,
and they were very surprised by this sudden "last minute cancellation"
and I'm leaving Monday - and this was a Friday, so while I still had
time - pressure was on to call them back and get this straightened
up and keep that appointment time.
Finally I got through CC, and explained it to them; it wasn't a
problem with me not going by myself but it was absurd that they
canceled the last minute when I have now a non-refundable
Greyhound Bus Tickets, and my mom would go with me. And why
they didn't give me any opportunity to allow me a chance to ask
my mother to join along on the Bus if they didn't want me to go
alone and while they checked their computer it just stated it was
canceled but it didn't state WHY it was canceled - they had to get
a hold of the office ~ and then after she had explained to them
that my mother is going with me, my appointment was reinstated
back to where it originally was.
However - this did cause some NEW issues on my end. My mother
will NOT travel in the DARK! My Departure on Monday is in late
afternoon and I do not get to Ft. Lauderdale until after Midnight on
the 18th - and she wanted the earliest Bus OUT - moreover, because
we already had rapport with the Terminal Manager here, she had no
problems in making that adjustment (since my tickets have to be fixed
anyway due to CC error when they had me being sent to the Miami
Terminal and not the Ft. Lauderdale Terminal). So I will be departing
very early Monday morning instead of Monday late afternoon.
Since my mom is an elderly person, she is wanting me to find some
motels / hotels near the CC and she's a Triple A member so it's not
a problem here - she can't handle me very well when I have seizures
so she wants to be able to get CC on the line if I have one out of
control. (But I doubt that will happen, because my son has told her
just send me to bed and I will be out cold, but that isn't her fear, her
fear is those seizures at nights is when I have the problem, she already
knows what has been going on because of what the Epileptologist and
Techs and Nurses have been telling her during both vEEG's before at
the Hospital when I was there the first time around and how it scares
them, and the Epileptologist himself had already said several times
over that I needed brain surgery - so it's scary to her. And she's seen
the seizures many times on the EEG - both the Techs and Epileptologist
had shown her while I was asleep, although they were small ones, but
the Epileptologist wanted the big ones - he had seen enough small ones.)
CC has shuttle service available for the motel/hotel nearby the Hospital,
and that is what my mom wants. (What my mom wants, she gets! I've
already been told that the CC Cafe food (Hospital) is very good (Hospital
Food is cheaper than Restaurant! *laughs* I know, because when I used
to drive, sometimes we (my family) when I used to drive, we would head
to my Hospital (where I was born) and EAT THERE! The food there is that
good and cheap! Or drive down where my dad worked - before he retired
and ate there at the Veteran's Hospital at the Mess Hall (they don't call them
Cafeterias) and it was even better! *laughing*)
~~~~~~~~
Having said that - I was completely frazzled after having freaked out!
My mom was disgusted, hurt, and upset more than she was angry, but
I cannot explain how furious my son was during that time span. I did
have my house full of neighbors here ... all of them were concerned,
that answering machine must had been played dozens of times! They
were MAD and that was all they were talking about how absurd it was
without giving any opportunities to discuss any other options!
Everyone was relieved to finally learn that it was settled, but I was
beginning to be brain-fried. So much stress had been imposed upon
me; I had a hard enough time trying to get everything in order just
for a few days and I still have a few final touches to put up (my son
has hideous memory and I have to put signs up, and yet, I have signs
up and my son still forgets!) and now I have to do additional things
on top of it and it just tripped me off where my son had to put me to
bed and I was out until he heard me what he thought I might had
been seizing around 8 and then when he turned the light on and saw
I hadn't even taken my afternoon or PM AEDS (because of CC) -
he went into a panic!
Because we have 2 ARNP's here (one's retired, the other is Semi-
Retired) he phoned them, and they both were over here quickly
and told him give them all (both the afternoon and PM meds)
and they had to wake me up and I took it but I don't ever remember
even taking any, because I went right back to sleep, and they stayed
awhile to monitor me.
I just woke up before 1:50 AM.
*sigh*
My son told me it was stressed induced seizure that triggered it all is
what the Nurses had reported, and they called it in to report it so it
could be documented.
I'm pretty sore right now, all my muscles ache, not sure what all
happened because I don't remember it but my son told me I had
went online, and I *groaned* and I had to figure out where I went
and he said I was only on for a short time before he pulled me
away from the computer and had his girl log me off and shut it down.