Hello!

Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!

stuartbungle

stuartbungle

Pillar
Messages
48
Reaction score
7
Points
38
Signed up a while ago, to read descriptions about Temporal lobe seizures, to see if I could related; (and thank you, I'm now certain I'm not going crazy and had a chat with neuro on friday), but not interacted really; until now, because got investigated for NF1 sept 2010, and a DNET in my right temporal lobe, which has been seen on scans since 2004, but threw questions etc from my Dr's, never really seemed an issue until more recently, Had a routine MRI July 2010 for Brain tumor (pilocytic Astrocytoma) which is why have mri's that was an issue in 1994 and 1995, but that buggers shrinking so all good on that front.
Chatting to Neurologist and explaining stuff, I'm actually having not only simple partial, but also complex. Understand this is Focal Epilepsy.

Dr Mohanraj has asked if I would be willing to take part in a trial for "Eslicarbazepine acetate"

Anyone with experience of this drug?
 
Hi stuartbungle, welcome officially to CWE!

Eslicarbazepine acetate is identical to Trileptal (generic = Carbamazepine) in the way it works, so it's a known entity in that sense, and should definitely control seizures for some folks. The hope is that it will be absorbed more slowly than Trileptal (more of a curve than a sharp peak), and in turn have fewer side effects, and/or be more tolerable.
You can read about Trileptal here http://crazymeds.us/pmwiki/pmwiki.php/Meds/Trileptal as well as search for posts about it here on CWE.

Have you been on any other AEDs? I would ask your neurologist what other AEDs he's prescribed for TLE in the past, and what has the best track record.

Best,
Nakamova
 
Only hooked up with a neurologist 2 days ago to chat about 'euphoric seizures',(i had no idea that is what they were) and was asked if I wanted to take part in some trial for Eslicarbazepine acetate and just wanted to find more about side effects etc compared to others meds (tegretal/ carbatrol), found some but not a lot of info, on this, but will check out that site out. cheers
no not been on any other meds


stuart
 
Hi, Stuartbungle,

Nakamova gave a great answer to your question, so I just wanted to say...

Hi, and Welcome to the forum!
 
You must log in or register to reply here.
Back
Top Bottom