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Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

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thelton115

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My name is Tiffany, mother to a beautiful 11 year old daughter diagnosed with absence seizures over 2 years ago. Once again, I have insomnia trying to find help for her after going through this for so many years. She has so many issues such as learning problems, obsessive/compulsive issues, suicidal thoughts, I can go on and on. It is hard to separate whether these may be symptoms of her disorder or separate issues. She is medication free now as the medications made her an insomniac, aggressive and hostile. It wasn't worth watching her personality wither away for the sake of her doing better in school. They don't do much to help her in school despite epilepsy foundation's recommendations on treating these kids. She is going to a new neuropsychologist next week. So frustrating trying to get her the proper care she needs.
 
Welcome Tiffany

Glad you found us. The people here are great & a lot of them seem to be experts in their own specialty which makes this site a great resource.

I was born with absence seizures & have also been diagnosed with a learning disability (though nobody can say exactly what it is). I had a hard time in school but eventually discovered my learning styles & techniques and have learned how I understand things better.

I had a lot of varying side-effects from anticonvulsants but we finally found one where the side-effects weren't worse than the seizures.

Here's the chart of Alternative treatments. Maybe you'll find something to help your daughter

http://www.coping-with-epilepsy.com/index.php?p=alternative-treatments
 
Hi Tiffany! Welcome to the forum! :) Feel free to ask any questions. We're all rather friendly. I'm a special ed. teacher in California, so if you have any questions regarding the school, feel free to ask. :)
 
Hi Tiffany! I'm sorry to hear about your daughter. I have epilepsy and I understand what you mean about your school. I am in 11th grade and my school has actually asked me not to come back to school because my seizures were a distraction to other students and the teachers were having to stop class whenever I would have a seizure (I have complex partials usually but they are usually very small and most of the time not noticable) and get this -they very, very rarely stopped class when I had a seizure. I've been seizure free for over a month and a few weeks (new record) and I still have not had education of any type since then.
I also would recommend an alternative treatment. They definately have less side effects. ;)
 
Hello Tiffany!...

Pleased to make your acquiantance!

While you're checking out all the above, put on some nice soothing music to help you de-stress.

It works wonders!
:rock:
 
Welcome to both you and Tiffany

:cheers:

No medical doctors here, but scores of people who have a lot of experience to share.

Research the alternative therapies, but don't be afraid of all the meds because a few did not work. I have been lucky and only had two over 26 years. Others here have gone through a dozen before they found the one that worked for them.

Also, I hope you have the chance to enjoy some of the humorous forums. Laughing hard can help rid your body of stress and help you sleep. (my own experience)

:cheers:
 
Welcome to CWE Tiffany
My daughter has tonic clonic seizures, and they most definitely stop the class.
AED's were not an acceptable choice for us. The side effects have been terrible.

We are beginning neurofeedback next week. Also changing my daughters approach to nutrition has made a big difference. If I can count on the fact that she will make good choices when she isn't in my presence. She is beginning to see the connection.
 
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