Help I Think I've Had A Wobbler!!!!!!

[Georgiagirl88]

Hugs!

Morning Elaine,

Sorry about your spells again!! Wish I could make it all better for you. I truly understand just wanting and needing your Mom. Since my Mom died in April, I will have a funny feeling and go to pick up the phone to call her and really think I can. Then I realize I can't. I know how much you miss her. Each time I feel that way I, I know she is sending me her love and is there with me. Your Mum is too! I talk to my Mom all the time, and laugh..sometimes cry. But I know she can hear me and laughs with me. My sister called yesterday crying because she had a bad night missing Mom. We all have our moments. Alot of the time I don't mind being alone..but if I recently had a spell I don't like to be alone. Although it isn't always possible for my husband to stay with me when he has to go to work. I hope you are feeling better and I'll be thinking about you. Keep talking to your Mum..she is listening and sending her love back to you!!!

Hugs for you,
Michelle

 

[Elaine H]

Hi Josie

Thanks my darling, not that I felt bad yesterday, but today, I have been busy as I always am, I am not a good person to get to relax, I find if I'm sat doing nothing, that's when I am likely to have wobblers, are you the same, the brain to me is like a great big sponge, and as long as I can keep it full of the proverbial "water" then nothing else can enter it to interfere, if you get my line of thought? I'm always interested to hear from you guys how your epilepsy first started and why, how long ago, what interferes and aggravates it? My book that I'm writing "Fit For Life" will be mainly about my experiences with epilepsy, but if I get enough feedback from you guys, I will base one chapter on other people's experiences, so anything you wanna tell me, I'm all ears babe!

The sun is in and out today, it is still very warm, and exceptionally hot for the UK, I'm so not complaining, I love the heat, the second time we arrived at our hotel in Egypt, it was 44 degrees, and the aircon in our hotel room had broken down, wow! that was bloody hot!

Thanks for your kind words mate, there is nothing like hearing from folk who simply understand when you are feeling a wee bit down eh? Mark, who is not only a firefighter, but a paramedic too, tries his best to understand me, but God I must be hard work!!! He is one of these really lucky people who is always the same...happy....upbeat...levelheaded.... arrgghh!!! people!! No,only joking, he is the best thing that ever happened to me, and I thank God for the day we met, in fact, if I hadn't had epilepsy, we never would have met. What about you sweetheart, have you met the man of your dreams yet? If not, and it's any consolation, I'm 45 now, but I had to wait until I was 36 to meet Mr Right, but by God it was worth the wait, he is a totally beautiful man inside and out, you don't get that more than once in a lifetime eh?

Anyway, keep in touch mate, and thanks again for your much valued support!!

Lotsalove

Elaine x

 

[Elaine H]

Hi There

Thanks for your support mate! I am definately better today, although I have been thinking about and missing my dear mum again today, well she's in my heart and head everyday, but of course if like me at the moment, you're sat around waiting for teh elusive perfect job to arrive, you have time to sit and think eh? I would start tomorrow, as long as they didn't mind a tall noisy opinionated bird in the office, with a big question mark cut into the side of her head!! I got some nice suits though!!!!!!!!! HA HA!! Still smiling!!

Lotsalove

Elaine x

 

[Wally]

The extreme emotions are probably a side effect of the Keppra. Did you just start it? I sometimes get it too.

 

[Cinnabar]

Sure is curious...etc

Hi All

I have been sitting in the garden all day in brilliant sunshine, I was feeling a little bit tired, and I was working on my University coursework, so all in all a pretty good positive day, so why oh why did I find myself in bed, fully dressed, all my make up on, and totally disorientated, I guess I've had a Complex Partial, SHIT!! I was doing so well, Mark went back to work at the fire station today, he's been off looking after me for a month since my surgery, so I guess I was feeling a little bit lonely, do you all enjoy your own company, or do you prefer to be in company? I don't mind being on my own when I'm not in "wobbly mode" I was ok this morning, no auras or anything, so to suddenly be sitting in the garden enjoying the sunshine one minute, and then to find yourself back in bed about two hours later was terrifying!! Will I ever be completely free from this awful condition?! I'm determined to stay upbeat and positive, it's the only way to deal with it right?

I have just been in tears in the garden, I hate self pity, you do wonder sometimes though don't you, if life will ever get back to normal? I've been thinking about my mum today aswell, I lost her just before Xmas, and I would so love to give her a ring at times like this, bless her.

Anyway, I just wanted to pour my heart out to you guys, I hope you are all ok?

Loadsalove

Elaine x

Can Partial Complex Seizues cause someone to loose time? Because of my Dissociative Disorder I've lost plenty of time. But, now, you have me wondering, as my doctors have me wondering - if some or all of my dissociative epidsodes have had to do with Partial Complex Seizires -undetected all this time? (Just a little something else to add to my identity crisis!) I'm by no means suggesting you have this kind of disorder! I've always meant to ask you but have "forgotten" if you have Temporal Lobe Epilepsy like myself. Temporal Lobe Epilepsy can make for some very unusual experiences.

About being alone. My preferred state...except for my love of camping. All my interests require solitude...writing, painting, reading, listening to music - I mean "really" listening. I, now, share a beach house, I can't swing on my own right now, with, I guess you could call him a roomie. We each have our own large territorry at each end of the house. If he swings over to my end (not really meaning to interupt my writing) it's like an alarm bell goes off in my ear. Now, when writing I swing around a door sign which reads "Do Not Disturb The Queen".

PS. Another solitary love. My old property had room for a garden. I loved designing a kidney shaped ground and did very well creating a beautiful English Garden. So different than anything you'd see on Long Island. You sound so wonderfully set in your home and with your garden. In time I'll have room and means for another one. Maybe I'll paint one in the meantime and if I become more tech savy I could post one over to you! I think it's nice to end this post talking about gardens!

Huge Hugs zooming over to you accross the Altantic! Love Laurie

 

[josieb]

Elaine:

I am exactly like you described - about keeping myself busy. I seem to be at my worst when I'm bored or have too much time on my hands. That's why I went bonkers when I was off work after my surgery. I'm not the type of person who likes to just sit around and watch television. I tried doing crossword puzzles and things like that to keep me busy, but I was so dizzy and had the extreme headaches that I couldn't really focus on that. I think I did overdo it, though. Instead of lying around and resting like I should have, I constantly cleaned the house and organized things, etc., just to keep me busy. It's the same way with the depression. If I'm busy at work, I don't have time to think about it.

To answer your question: My epilepsy started in my early teens, right around the time that my menstrual cycle started. Back in that time, the doctors/neurologists didn't appear to know anything about catamenial epilepsy. I always had the complex partial seizures, but they weren't that frequent and were somewhat controlled. In my late 20's (I'm 40 now), I started treating with a new neurologist and he changed my meds around. As a result, for a long period, I only had nocturnal seizures, which permitted me to drive and live a more "normal" life. Then, for over two (2) years, being on only a low dosage of meds, I was completely seizure free. All of the sudden, out of the blue, they started coming back -- during the day and more frequent (in clusters). That was about 4 years ago. I had more testing done, and as a result, they located the small tumor on my left temporal lobe. Every combination of drugs (lots) did nothing to control the seizures and I started having more. After all of the testing, etc., I had the surgery in late February of 2006. I was seizure free for about 5 months, but then started having the simple partials. The neuro I was treating with at the time, put me on different meds. As a result of the one (can't think of the name right now), it lowered the sodium level in my body. I had my first and only grand mal seizure in February 2007. After being in the hospital a few days, I started treating with my current neuro. He tried different combos of meds, and my last seizure was in September 2007.

With regards to your other question, I was lucky enough to find "Mr. Right". We started dating almost 14 years ago, and just celebrated our 10th wedding anniversary on May 30 this year. He's definitely a keeper. I just feel so guilty for putting him through so much. Like you described, he tries so hard to understand everything, but unless you actually go through it, you can't truly understand it all. Especially, the auras, depression, fears, side effects of the drugs, etc.

I'm so glad to hear that you have Mark. He sounds like a great guy. They say God works in mysterious ways, and it appears that you were meant to meet each other. Although it wasn't under the best circumstances, it's what brought you together.

Sorry for babbling on so long. Please keep in touch and let us know how things are going for you. You can email me at any time.

With Love,
Josie

 

[Elaine H]

Hi Laurie

Thanks for your kind words! Yes, I have right Temporal Lobe Epilepsy, or hopefully "had" it's strange, I sometimes enjoy my own company, but mainly during the daytime, I don't much enjoy it at night, in fact, Mark has just gone off to work 3.30 pm, as he is on tonight and tomorrow, so I know that I'm alone now until Friday morning, we always joke about me having the vicar in while he's at work!! I do love it when he comes home though, we really do everything together, how cheesy! but he is my soulmate!

We love our garden too, it's bout 250 ft long, and it is a 1930 house, so the garden is quite beautifully established, it needs a lot of looking after though, and we so desperately need a new lawn mower. Hope I can get back to work, and get earning money again, we have a holiday to pay for!

I used to read alot, but I just cannot concentrate, I've nearly finished my university course, then I must sit and type up the notes for my book, I'll get that published if it's the last thing I do, I'm dedicating it to my lovely mum.

Feel free to drop me a line, I'm going to leave the computer on, if you are on your own it sort of makes you feel as though there are friends there if you know what I mean.

Cheers

Love Elaine x

 

[Cinnabar]

I'll be damned!

Hi Laurie

Thanks for your kind words! Yes, I have right Temporal Lobe Epilepsy, or hopefully "had" it's strange, I sometimes enjoy my own company, but mainly during the daytime, I don't much enjoy it at night, in fact, Mark has just gone off to work 3.30 pm, as he is on tonight and tomorrow, so I know that I'm alone now until Friday morning, we always joke about me having the vicar in while he's at work!! I do love it when he comes home though, we really do everything together, how cheesy! but he is my soulmate!

We love our garden too, it's bout 250 ft long, and it is a 1930 house, so the garden is quite beautifully established, it needs a lot of looking after though, and we so desperately need a new lawn mower. Hope I can get back to work, and get earning money again, we have a holiday to pay for!

I used to read alot, but I just cannot concentrate, I've nearly finished my university course, then I must sit and type up the notes for my book, I'll get that published if it's the last thing I do, I'm dedicating it to my lovely mum.

Feel free to drop me a line, I'm going to leave the computer on, if you are on your own it sort of makes you feel as though there are friends there if you know what I mean.

Cheers

Love Elaine x

I fully intend to have my book published, too!
Will talk with you tonight or tommorow! Love - Laurie