For a few days up to a week ive been having 'seizures' was every other day but now its upto two a day! I feel constantly exhasuted and confused and i cant think staright. Plus the fact thatmy neurologist doesnt believe me! She thinks its psychological due to the fact im bipolar. Everyone is saying it doesnt look like typical epilepsy but arent there different types? Its like everyone just ignores me as soon as they find out im bipolar - want to refer me to psychiatrsists and even she wont listen! Basicaly it started out with just zoning out 'absences' but now its developed into absences, tensing legs, muscles flaying rnadomly or weaking of muscles, i fell of a chair and started writhing not convulsing. im sometimes there more than im not, i can hear but i cant respond. i sometimes randomly laugh and cry. I had two sezires yesterday and again i wake up feeling confused like i cant make sense of things and that has happened the last 2 days. Oh and dont get me started on the headaches MIGRAINE is an understate ment. And all my muscles hurt like someone beat me up yesterday. I dont feel better from sleeping at all. But i think it could be becuase after the seizures i was trying to carry on instead of resting i think i pushed myself too far. I had a period of dizzy and lightheadedness for about 2 weeks then this all started. I dont know what to do knowone is listneing. even my family are p*ssed at me. im on epilium for my bipolar 900mg, and quetiapine which is being scaled down atm. Ive had four eegs all showing abnormalities in the temperol lobe but no epileptic activity. and the neurologist just dismisses it all as though its not impacting me! Last time i had a long eeg and after she was literally like ' well i dont know why youre having these but its not epilepsy.' that was it! m' and then she proceeded to tell me (when i was upset and saying i wanted more tests and opinions) 'oh this is what happens wehn people wont accept that we dont have the answers, maybe you should have CBT to handle these expereinces.' and that was it id had it then i was like its not bl**dy psychological I AM NOT MAKING THIS UP. and then she was talking about whether i was going shopping after the appt with her in london iwas like *****ing h*ll wat is going on am i really the one with the problem; shes sposed to be a good neurologist up in london. I dont know what to think. Ive seen 2 neuros now - one nhs one private (and the nhs was even more of a waste of time) . Please help me.
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- Thread starter gal109
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Soniag
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i say you should keep asking for more tests. my seizures started out the same as yours, but we didn't really know what was happening so we just left it. then when i had a blackout at work they sent me for an eeg which then showed it was epilepsy. just keep asking for tests or even see another neurologist if you really have to, as long as you finally get some answers and help
no.guru
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I wish
gal109, I wish I had insight into your specific symptoms and condition but I don't. What I can offer is how I was able to get control of my condition and deal with my doctors more effectively.
Several years ago, I was dissatisfied with how my neurologist was treating me - to say the least. They labeled my condition intractable and seemed perfectly fine with me having seizures; they even pushed the idea that the seizures could never be stopped completely and nonchalantly tried to get me to accept this.
I obsessively learned as much as I could about epilepsy as it related to my specific history. I know my neurologist's attitude is more realistic in some cases, but I didn't accept it and didn't rest until I had my facts together and could refute their diagnosis with my own ideas and specifics from my history. I suggested a solution I knew I could live with much better than theirs and when my neuro said no I found another one, put my diagnosis in their lap and told them what medication I needed. I then asked them: "Yes or no?"
This process was difficult, but it was done in about six months.
I understand the desire to go to a physician and have them take care of you; by the book, that's the way it should work. In practice it almost never does, IMO.
You know your body and symptoms best. No one - regardless of education or status - can refute that.
Get a copy of your medical history, and do your homework. Then go talk with them - calmly and firmly. I can't promise anything, except that it will help.
gal109, I wish I had insight into your specific symptoms and condition but I don't. What I can offer is how I was able to get control of my condition and deal with my doctors more effectively.
Several years ago, I was dissatisfied with how my neurologist was treating me - to say the least. They labeled my condition intractable and seemed perfectly fine with me having seizures; they even pushed the idea that the seizures could never be stopped completely and nonchalantly tried to get me to accept this.
I obsessively learned as much as I could about epilepsy as it related to my specific history. I know my neurologist's attitude is more realistic in some cases, but I didn't accept it and didn't rest until I had my facts together and could refute their diagnosis with my own ideas and specifics from my history. I suggested a solution I knew I could live with much better than theirs and when my neuro said no I found another one, put my diagnosis in their lap and told them what medication I needed. I then asked them: "Yes or no?"
This process was difficult, but it was done in about six months.
I understand the desire to go to a physician and have them take care of you; by the book, that's the way it should work. In practice it almost never does, IMO.
You know your body and symptoms best. No one - regardless of education or status - can refute that.
Get a copy of your medical history, and do your homework. Then go talk with them - calmly and firmly. I can't promise anything, except that it will help.