ladybirdfish
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Hi,
I'm 22 and from Ireland and found this place when I was looking for some help.
I have only recently been diagnosed with epilepsy but the whole situation is very confusing so I don't really know anything and Ireland doesn't have a good support system for epilepsy. I will try and explain my situation and hopefully someone will be able to give me some advice.
I first knew something was wrong in September 2017 when I began to get numbness in my hand that would last for around 5-10 seconds and then would go, that lasted for about a week. Then I got the numbness in my hand which spread down my right side to my knee and turned into a pain in my knee. This sent me to the hospital. The doctors Thought at the time that it was a pulled muscle and sent me home. Two days later I had what I class as my first seizure, I was in the kitchen making tea and the next thing I know I'm on the floor staring at the ceiling, My mum told me that it lasted a minute. I went back to the hospital and they did numerous tests and told me they were transferring me to a hospital in Dublin so I would see a Neurologist , at this point I was having 14 -15 seizures a day .The neurologist put me on Keppra and phenytoin. I was in hospital for 3 weeks before they sent me home and telling me it was epilepsy, focal seizures.
Then the next time I saw my neurologist he told me he was taking me of the phenytoin as the medication had only brought it down to 5 and he wanted to get rid of it completely. From that day I have been back to having up to 18 at most seizures a day and have tried 9 different types of medications. My neurologist sent me to a psycho neurologist because he told me he believed that I did not have epilepsy as the medication should have worked.
After seeing the psycho neurologist she sent me back to my neurologist as there was nothing psychologically wrong with me. At this point I decided to get a second opinion and went to a different neurologist who referred me to a epilepsy monitoring unit. After being there for 3 nights I was told I have generalized epilepsy but my seizures look like focal seizures which makes it slightly unusual but nothing to be worried about and they referred me to a epilepsy professor to be my new doctor.
Now after all of that and because I am still having seizures my dad is very stressed. He panics when I get up to walk around the house or make a cup of tea or even have a shower and its caused some major tension. As much as I try to be chill about the whole situation it really has changed my life and as bad as I feel saying it the last thing I need is my dad constantly reminding me about it as well. How do I get my dad to calm down so I can get some peace because the way things are now I actually hate being in the same room as him and my dad and I are like best friends.
Also do certain diets or meditations help with seizures ?
Can I go to the dentist while I'm still having seizure's ?
Exercises that I can do as I fall during a seizure?
Any general information as I got told literally nothing
:hugs::e:
I'm 22 and from Ireland and found this place when I was looking for some help.
I have only recently been diagnosed with epilepsy but the whole situation is very confusing so I don't really know anything and Ireland doesn't have a good support system for epilepsy. I will try and explain my situation and hopefully someone will be able to give me some advice.
I first knew something was wrong in September 2017 when I began to get numbness in my hand that would last for around 5-10 seconds and then would go, that lasted for about a week. Then I got the numbness in my hand which spread down my right side to my knee and turned into a pain in my knee. This sent me to the hospital. The doctors Thought at the time that it was a pulled muscle and sent me home. Two days later I had what I class as my first seizure, I was in the kitchen making tea and the next thing I know I'm on the floor staring at the ceiling, My mum told me that it lasted a minute. I went back to the hospital and they did numerous tests and told me they were transferring me to a hospital in Dublin so I would see a Neurologist , at this point I was having 14 -15 seizures a day .The neurologist put me on Keppra and phenytoin. I was in hospital for 3 weeks before they sent me home and telling me it was epilepsy, focal seizures.
Then the next time I saw my neurologist he told me he was taking me of the phenytoin as the medication had only brought it down to 5 and he wanted to get rid of it completely. From that day I have been back to having up to 18 at most seizures a day and have tried 9 different types of medications. My neurologist sent me to a psycho neurologist because he told me he believed that I did not have epilepsy as the medication should have worked.
After seeing the psycho neurologist she sent me back to my neurologist as there was nothing psychologically wrong with me. At this point I decided to get a second opinion and went to a different neurologist who referred me to a epilepsy monitoring unit. After being there for 3 nights I was told I have generalized epilepsy but my seizures look like focal seizures which makes it slightly unusual but nothing to be worried about and they referred me to a epilepsy professor to be my new doctor.
Now after all of that and because I am still having seizures my dad is very stressed. He panics when I get up to walk around the house or make a cup of tea or even have a shower and its caused some major tension. As much as I try to be chill about the whole situation it really has changed my life and as bad as I feel saying it the last thing I need is my dad constantly reminding me about it as well. How do I get my dad to calm down so I can get some peace because the way things are now I actually hate being in the same room as him and my dad and I are like best friends.
Also do certain diets or meditations help with seizures ?
Can I go to the dentist while I'm still having seizure's ?
Exercises that I can do as I fall during a seizure?
Any general information as I got told literally nothing
:hugs::e: