Hey everyone :)

[Loopy Lou]

Hi, it's been a while. Months i think :O

Been a hectic few months. After Dec when my aunt died (11th death in the family in 3 years) i kind of withdrew from the site a bit.

Anyhoo, since then i've left work and am now on disability. We've had 6 new births in the family, i finally threw out my funeral boots in the hope i won't need any for a while, my dad has gone to rehab for 6 months, my mum has a new boyfriend, and i got myself a new cockatiel, i now have 2 more birds than i should in my flat lol.

Seizures are having a strange pattern. I haven't had a TC since december i think, because of the stress of my aunt plus having shingles and the flu at the same time, but still having many partials. I'm at 3000mg Keppra and 800mg Tegretol now.

I've been referred to a sleep clinic because i sleep way too much. I'm convinced it's just because of the meds. Did a home sleep study to test for sleep apnea and they said that even though i showed no signs of it, they're going to treat me for it anyway. Instead of just admitting it's the meds or finding another cause. They're treating me for it purely on the basis i'm overweight, no other reason. That was their words ¬.¬

Ironically i slept through my last appointment for the sleep clinic which was to fit me for a c pap mask, but to be honest i was in two minds about whether or not i was going to turn up anyway.

So anyhoo, yeah thats where i'm at at the moment. I'm planning, whilst i'm off on disability to try and go back to college to do Pharmacy services, but trying to find a place near me that does part time courses is proving rather difficult!

Gonna have a nosy round now and see what i've missed. Missed you guys

 

[huskymom]

Welcome back! So sorry to hear of your aunt. She will be in my thoughts. Congrats on the new bird! Do they all talk to each other? I hope that you are able to find schooling close by.

 

[Loopy Lou]

Yeah they talk to each other and follow each other around lol. My male tries to run away and the new one follows him. Here she is, She's called Echo

Closest place i've found for college so far that does the course i want is in Edinburgh in Scotland which is a fairly long way from where i live in northwest England >.<

The search continues.

Edit - wow, sorry, pic turned out a bit big >.<

 

[huskymom]

Great picture! Thanks for sharing. She is beautiful!

 

[Cint]

Welcome back, Lou,

Sounds like you've had a lot going on in the last few months. Sorry to hear about your aunt. But you do have some new little ones, so enjoy them. And maybe with less stress in your life, your seizures will dissipate somewhat. Let's hope so.

I do hope you can find something close by as far as schooling. Keeping my fingers crossed.

 

[Hand of Blood]

Nice to see ya! I know how u feel on them Meds I hate it!!
Just wondering how did u get disability I'm looking at the forms am like no way will I get it haha

Must have been crazy with you for a while, I hope things look up

 

[Nakamova]

hey Lou welcome back! I'm glad to hear you're hanging in there, hope things get better with your seizure control. And I hope Pharmacy School works out, that would be terrific.

 

[Loopy Lou]

Nice to see ya! I know how u feel on them Meds I hate it!!
Just wondering how did u get disability I'm looking at the forms am like no way will I get it haha

Must have been crazy with you for a while, I hope things look up

I ended up leaving my job because of epilepsy, then i was advised to go on ESA instead of JSA. If you want more info about what's available, feel free to send me a PM and i'll help you any way i can x

And yeah it has been a little crazy lately. Apart from being skint all the time now, i think things are starting to look up a bit

Cint - i come from a MASSIVE family lol. Was talking to my granny over in Ireland the other day and she said she lost track of grandchildren after 40ish and great grandchildren after the first ten. She's now asking when i'm going to get married and have kids before i end up an old spinster (I'm 26!) lol

 

[Nakamova]

Lou, if I remember right, you were trying to quit smoking -- were you able to succeed?

 

[Loopy Lou]

Lou, if I remember right, you were trying to quit smoking -- were you able to succeed?

Nope >.<

With everything going on i was right back on them after a couple of weeks.

On the bright side i have cut down an awful lot. Possibly because i can't afford proper cigs and am mostly rolling my own, and i'm terrible at that. Hence smoking loads less.

Attempt number 164588135854785441 will probably begin sometime in the near future but no definite plans at the moment.

 

[Nakamova]

It can be pretty tough to quit when things are stressful all around.. Congrats on cutting down -- every little bit can help...

 

[Loopy Lou]

I feel like things are very out of my control healthwise at the moment, so i don't think i'll be attempting to quit again any time soon. Don't want to screw things up more >.<

 

[MuayThaiFighter]

glad you are back, sorry to hear the bad news. Glad to hear the good news though about the new bird. Pets always make things better!

 

[kayla]

i took Tegretol and keppra separately. one made my hair fall out i think it was the keppra and i think the tegretol was the one that made me sleep constantly. i remember i just wouldnt take it anymore because of the fact it made me sleep so much.

 

[CQ:)]

Hi Lou,
It's great to see you back on here again

 

[Eli]

/huge huggs and welcome back!!! You've been missed!

Nope >.<

On the bright side i have cut down an awful lot. Possibly because i can't afford proper cigs and am mostly rolling my own, and i'm terrible at that. Hence smoking loads less.

I also roll my cigs; I've found I smoke less just because I spend time rolling them.

Love your pic and have missed the bird antics!

 

[petero]

at least join me in smoking outside more often - it's getting more and more comfortable for me to smoke outside

 

[kayla]

i only smoke outside at my house. i hate my house smelling like cigs!

 

[Loopy Lou]

I think it's probably as cold in my flat as it is outside lol. I can't afford to have the heaters on and this winter seems never ending. This time last year we had a heatwave, this year we have snow >.<

Kayla - yeah, i'm 90% sure that its the Tegretol that's making me sleep so much. I'm only ever awake for about 6 hours at a time, and sleep like the dead for well over 12 hours at night usually. My neuro is very reluctant to take me off it though as he's convinced it will help my seizures if they keep putting the amount up ¬.¬ Gah.

 

[kayla]

lou i REFUSED to take the medicine no matter what the doctor said! i told him to find something else or i will just have the seizures.