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stevetan2010

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Hi everyone, my name is steve and my real chinese name is Tan Soon Chye. I am a singaporean diagnose with epilepsy. The reason why I register to join in this forum is because I know how an epilepsy patient when they suffer another round of epilepsy. I would like to share my experience with you all first hand and that is myself

My first epilepsy attack.
I remember I am around 16 years old (I am 30 years old now), I am watching TV and suddenly I feel terribly giddy and I went up to my mum and say I am giddy and I fainted. When I woke up my mum told me my lips turn purplish and is foaming. After the same attack(I forgot when) happen again, my mum and my dad took me to the hospital and the doctor says I had epilepsy.

For first four to five years I am on medication. I remember clearly it is brownish pills and I had to take two every night. Initially it was ok, I can live life as normal and the attack frequency is once per year. But had to say I am inconsistent and in fact stop my medication for a period of time before the attack came. Needless to say, I was punished with a real attack. Why? Because I bit my tongue and a flow of blood came out. It sucks, I hate the acid taste in my mouth and the pain I had to confront to each time I eat porridge or rice or ANYTHING HARD!!!! Seriously it sucks. As I finish my studies and got out of national service to find a job(National service is a military service which all singaporean males had to perform for 2.5 years currently it is reduced to 2 years), like others I had trouble landing a good job but managed to get one trainee position(Because the economy is very good that time). But that time, I am still on western medication and it is seriously affecting my sleep and yes the signs of epilepsy attack NOT the attack is affecting me. I cannot play my favourite dota for more than an hour and I can't sleep well. This cause my frequency to increase from one-two per year to two per year. As my trainee period last for a year, I am very worried as I had sent more than twenty applications and most did not reply back. The ones which call me told me to wait. Anyway fast forward, I am grateful to my current company who did not mind me condition. Anyway, this is when a recommendation from my uncle saved me and helped me changed my life. At that time, he has been learn chinese medication purely for the sake of knowledge purpose. Through his interaction with the teachers, he learnt that epilepsy can be treated using either chinese medication OR accupunture.

Will continue in the next post
 
So I went with my dad to see this doctor who is recommended by my uncle. The result is instant. ( Maybe because my condition is light. I dun know but it works) First He told me that I had to prevent myself from having too much phlegm as he believes that phlegm is also one of the causes for epilepsy. He advised me not to eat goat meat which is heaty and any food and drinks that are heaty. Then he start to treat me using accupuncture. I remember the first treatment is quite scarily hahahahahaha as you can feel the !@#$%^&* needles right into your head and top it of with an electric treatment. Anyway it is quite comfortable of cos minus the initial insert of the needles. Anyway right after the traetment, I went to play my dota. I play for five straight hours without any signs of epilepsy!!!!!! IT'S A DREAM!!! And since then my attack is reduced drastically to once per year!!!!! Initial treatment is you have to be treated once per week for two continuous months and then after you go back like once a month or once per two months. I go once per two or three months now. ^_^ Year 2008 is good for me as I pass with flying colours without any attacks.:clap: The accunpucturist who treated me has passed away sadly and I am extremely lucky that he teaches his disciples well and all of them knows the positions. But my condition is a bit weird as I had to be inserted more deeply than normal treatment. But I dun mind as I know 45 mins in exchange for 3 months medication and attack-free freedom is worth it.

That is something I hope you all will understand. I am not here to promote anything but rather to share with you all my experience. Western medication has side effects and the pills I am taking cos me to have sleep loss and loss of memory but accunpucture helps me without any side effects. This is NOT the best treatment as you must endure some pain or uncomfortable feeling especially for first timer. So for those who wish to try this pls be prepared. The chinese name for the accupucture treatment is 四神聪 which involves five needles one to act as a guide. Note: You have to really 'FEEL' the needles in your head!!!!! Most accupucturist will only poke your head scalp and that is NOT effective!!!!

Lastly to end this, I sincerely wish all of those who is still suffering from epilepsy will recover at least back to an almost normal life.
 
Hi Steve,

Welcome and thank you for sharing your story with us. Congratulations on finding a treatment that works for you.

Blessings,

Ann
 
Hi Steve! Welcome to CWE. :) Glad to hear that you found a treatment that works well for you. :)
 
Hi Steve! Welcome to CWE.

So glad that you found something that is helping you. Wish i could. But i have had this for over 54 years and i have no idea when they come on. I have them twice a month. But the last 2 months i have had 10.
 
Sorry Nana1 can't help you much on your condition. What I can share is to share with you how the accupucture treatment is done.

One needle will need to be inserted at a point whereby it is a crosspoint between your ear tips and your nose tip. So it is like a 'T'. The point that matches the three tips will be inserted lightly as a marking point.

Then four needles will be inserted at 45 degrees around 0.2 -0.8 inches deep with a distance of around 1 inch from the marking point(North (Nose Tip Direction), South, East(Ear Tip Direction) & West(Ear Tip Direction)).
(Because I am treated by the old doctor and everytime he insert the needles, I can feel it that is why now I still insists on getting the feel even though the accupucturist says the insertion is already very deep)

That is all and you wait for 30-45mins before you remove the five needles and that ends the treatment which cost me SGD17(around EUR7.40) and 45 mins which can last me now for three months. Now I am hoping this can treatment can hold off my epilepsy till the day I rest below the ground.
 
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