hi,i`m new on here,i`m from london,england,
i thought i`d check this forum out cos in uk there just is`nt anything to give me any support or information about dealing with my epilepsy and looking after my 3 children(8,5,2).
i have only been diag in nov with left temp lobe epilepsy,after a really bad grand mal,i was in hosp for 5 days(very grime)with not one person,doc or other wize knowing what was wrong with me.
i had to wait 3 months to see a neuroligesy(terrible spelling),to tell me in a 5 min consult that i had epilespy,my whole life has been turned upside down.
the 1st meds they put me on were really bad and increased my sizeures(every day nearly),lamotrigine,now i`m on carbermazepine retard(sorry about the spelling)i am much better,about a sizeure every 2 weeks,but it really wipes me out and i`m so tired,
i feel so guilty my kids are really suffering,you always hear about the people with epilepsy,but what about everyone around them,
my daughter(8),has to care for me and her bro and sis,when i have a sizeure,she is so amazing,she puts me in recovery position,puts the kids in their rooms and tv on,then checks me again then goes for a neighbour or rings an ambulance.her life is maddness at the moment,and i can`t do a thing about it.
i suppose i just need someone to know where i`m coming from,cos here you would thing i`ve grown another head. poeple without epilepy just don`t have clue what we have to go through.
i thought i`d check this forum out cos in uk there just is`nt anything to give me any support or information about dealing with my epilepsy and looking after my 3 children(8,5,2).
i have only been diag in nov with left temp lobe epilepsy,after a really bad grand mal,i was in hosp for 5 days(very grime)with not one person,doc or other wize knowing what was wrong with me.
i had to wait 3 months to see a neuroligesy(terrible spelling),to tell me in a 5 min consult that i had epilespy,my whole life has been turned upside down.
the 1st meds they put me on were really bad and increased my sizeures(every day nearly),lamotrigine,now i`m on carbermazepine retard(sorry about the spelling)i am much better,about a sizeure every 2 weeks,but it really wipes me out and i`m so tired,
i feel so guilty my kids are really suffering,you always hear about the people with epilepsy,but what about everyone around them,
my daughter(8),has to care for me and her bro and sis,when i have a sizeure,she is so amazing,she puts me in recovery position,puts the kids in their rooms and tv on,then checks me again then goes for a neighbour or rings an ambulance.her life is maddness at the moment,and i can`t do a thing about it.
i suppose i just need someone to know where i`m coming from,cos here you would thing i`ve grown another head. poeple without epilepy just don`t have clue what we have to go through.
Glad to hear that your med is working for you....but your dosage might need to be worked on if your still having seizures every two weeks. Either that, or your neuro may need to add on a different med. Do you know what is triggering your seizures? Lack of sleep, stress, hormone shifts, poor diet, flickering lights...all of these can trigger seizures.
