Ignorance is bliss
I had my first seizure when I was 17. I just stared out into space for about 30 seconds. I went to my primary care doc, who sent me to a neurologist. He put me on a med, but didn't really explain my diagnosis at all. We were just so scared and I just wanted to get rid of these spells, that I just took the med without question.
After some time of this med (I can't remember much, not the name of the rx) not working, we tried another one. I was so scared, I didn't want a diagnosis, just wanted the spells to go away.
No control of seizures with meds. I had MRI, EEG, and all the other exams. Finally, my neurologist told me that I was having seizures. I didn't didn't want to believe that, so I just took more meds and went off to college. After 3 years of college, I came back home and lived with my parents. After moving back, I went through more MRIs, EEGs, and other exams to try to control my seizures. I finished college, but no stopping them.
I have only had 1 tonic clonic, when I went to the highest elevation in CO, in the mountains.
4 years ago, I had an internal EEG for 8 days. My neurologist was hoping that we could extract my focal point of the seizure, but they had to locate it. So I was in the hospital with my skull open, and EEG cords attached to my brain. Unfortunately, my focal point is too near my visual cortex, so if they removed it, I would lose half my vision in each eye. :sad:
Now, I can never have an MRI again, I have a titanium plate for my skull where they openned me up. ;-)