mommieinmi
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I finally saw the neurologist. My daughter had a really bad seizure on Friday that scared the heck out of me, mostly because I didn't know what to do. After that, they got us into the neurologist. We went yesterday.
They explained a lot to me. They believe she has generalized epilepsy based on her EEG results and what I've described. I think she has been having a lot more seizures than I realized. I think she is having tonic-clonic seizures (that's what I witnessed on Friday), absence seizures, and myoclonic seizures.
She has been doing weird stuff that I didn't realize were seizures like zoning out. I didn't realize these were seizures because they happen so quickly but now I think that's what's going on.
They upped her Keppra prescription yesterday and gave me a prescription for diastat. I am still waiting for the pharmacy to fill that but am so glad to have that and the info on what to do if we need it.
But, my question is, how long did it take for your child's seizures to get under control. I think I am concerned that if the Keppra didn't stop the last seizure that it may not stop the next one either. I will feel better once we get her meds right.
Did you have to try different meds or did the first one work? Do you think the increased dosage will help?
I know you aren't doctors and can't tell me for sure of anything but I was hoping you could share your experience.
They explained a lot to me. They believe she has generalized epilepsy based on her EEG results and what I've described. I think she has been having a lot more seizures than I realized. I think she is having tonic-clonic seizures (that's what I witnessed on Friday), absence seizures, and myoclonic seizures.
She has been doing weird stuff that I didn't realize were seizures like zoning out. I didn't realize these were seizures because they happen so quickly but now I think that's what's going on.
They upped her Keppra prescription yesterday and gave me a prescription for diastat. I am still waiting for the pharmacy to fill that but am so glad to have that and the info on what to do if we need it.
But, my question is, how long did it take for your child's seizures to get under control. I think I am concerned that if the Keppra didn't stop the last seizure that it may not stop the next one either. I will feel better once we get her meds right.
Did you have to try different meds or did the first one work? Do you think the increased dosage will help?
I know you aren't doctors and can't tell me for sure of anything but I was hoping you could share your experience.