How long have you had Epilepsy?

How long have you had Epilepsy?


  • Total voters
    436

Ruth

New
Messages
3,025
Reaction score
0
Points
0
Hi COurt, I am surpised since I live in California, as well.

Have you called UCLA, UCSF (University of California in San Francisco)? I got into UCSF for free. They do research. AsK them?
 

C0urt

Veteran
Messages
2,409
Reaction score
1
Points
153
going to uv davis in sacramento, I was going there free. but my insurance got rescinded a few days ago. I am working on that
 
Last edited:

Katarn112

New
Messages
31
Reaction score
0
Points
0
6 months now. It seemed to have been getting better, but my seizures are just starting to get more frequent now. Wow, I can't believe it's been that long. I tripped and fell and my head slammed with force into a metal desk support beam. Shortly after is when the seizures began.
 

C0urt

Veteran
Messages
2,409
Reaction score
1
Points
153
6 months now. It seemed to have been getting better, but my seizures are just starting to get more frequent now. Wow, I can't believe it's been that long. I tripped and fell and my head slammed with force into a metal desk support beam. Shortly after is when the seizures began.
wait till it gets to be a year, they sneak up on you.
 

Ruth

New
Messages
3,025
Reaction score
0
Points
0
Hi Katarn,

I am very sorry that you had such a bad seizure. Whether it is six months or 66 years, it seems like a lifetime, each time you have a seizure. Some people have warnings, others do not. Sometimes I have auras and sometimes I do not.

I hope your doctor can get your seizures under control. There are alternatives to medicines here at CWE. Maybe you can check into those. When I was first diagnosed in 1949, medicines were just starting to come out (Dilantin). I had no alternatives to check into. Nutrition plays a big role, so does Neurofeedback. You can just press on Bernard's
blue alternative medicines and Neurofeedback. You will learn a lot.


Around the end of December, I had a seizure and fell down and hit the floor right on my head. For several days, I felt like my brain had broken in pieces. It was one of the most painful seizures that I have had.

My doctor had put me on pain pills for my back. I hardly ever take them. I did this time though.
 
Messages
327
Reaction score
0
Points
0
Let me see how long have i had epilepsy ??????
Oh yes i remember its TOOOOOOOOOOOOO long lol


seriously its about 31 yrs
 
Messages
1,914
Reaction score
0
Points
0
Hey Lureswinger! me to! Welcome! I'm 44 now and I have had epilepsy since I was 10.I am glad you are here!
 

Ruth

New
Messages
3,025
Reaction score
0
Points
0
Hi Lureswinger, welcome to our friendly forum. It was made by Bernard out of love for his wife Stacy. That love permeates throughout the whole forum.

I think I have repeated myself several times on when I have had epilepsy. Stilldancing, I did not know you are so young. I am ancient, 66 years old, have had epilepsy since I was 6.
 
Messages
209
Reaction score
0
Points
0
they told me i was probably having absence seizures all my life, i started having grand mals at age 12, and just got diagnosed officially earlier this month. i'm 16 now
 

momof3boys

Account Closed
Inactive
Messages
2,284
Reaction score
0
Points
0
Drs think its been since the birth. I started having seizures when I was just months old, but my mom didnt know they were seizures at the time. It wasnt til I was around 18 months of age that I was offically diagnosted with Epilepsy. Since then, Ive been on medication, and one day hope to not have to take it!
 

Andrew

Stalwart
Messages
193
Reaction score
2
Points
63
I had my first seizure at two weeks old. That's just over 40 years ago. I have been using vitamin B6 to control my seizures for almost 40 years. My medication now consists of B vitamins only.

Here is a thread that I started over at BrainTalk Communities: http://braintalkcommunities.org/forums/showthread.php?t=36549


**DO NOT ALTER ANY MEDICATION WITHOUT YOUR DOCTOR'S CONSENT**
 
Last edited:

Elsie

Stalwart
Messages
267
Reaction score
1
Points
51
48 Years...that I know of... is it in remission? Who knows. Not gonna test it. Been there done that, didn't work.
 

Alisonx

New
Messages
1
Reaction score
0
Points
0
Was diagnosed at 15 so that's 6 years now. I'm on 200mg lamictal twice a day. It's better than at first as haven't had a clonic or tonic-clonic seizure in over a year but it's still not controlled as I still have absence and simple partial seizures
 
Top