How long to change from one seizure to another?

[Kyla]

For anyone who's seizures started off as just simple partials, if they evolved into generalized seizures or any others...when did you start noticing changes? What kind of changes were they? And how long (days, months, years?) did it take for your seizures to change?

I ask because I feel things are changing. I'm undiagnosed but my doctor is suspecting that I'm experiencing simple partial seizures. She is unsure so I'm under no medication right now. Originally I will just space out or stare off with my vision blurred, relaxed feelings, and a slight decreased connection to things around me. But now I've noticed more ticks or jerks of usually my right side (usually my arm) during them, and different feelings during/after (anxiety, tired). Also outside of the stares, I've been having little clusters of ticks/jerks of my arm or leg especially when trying to get to sleep (once had a cluster which involved my arms and legs for a few seconds). Throughout the day I get sudden feelings of sickness, tiredness or the feeling that I'll pass out/fall over. These were all changes I really started to notice around March/early April.

 

[Nakamova]

Everyone is different when it comes to seizure escalation -- there are a lot of external factors that play a role: Age, metabolism, environment, rate of exposure to triggers (physical, physiological and emotional stressors), history of illness/injury/trauma, etc. They main things is to pay close attention to what's going on. If you can ,keep a diary where you note every seizure/symptom. If your symptoms are changing, let your neurologist know, and explain your concerns. It's good that she doesn't want to prescribe meds needlessly, but it's also important to prevent the brain from getting in the habit of misbehaving.

While waiting to get your neuro to pay attention, you might want to try a magnesium supplement after dinner or before bedtime. It can often help with tics/jerks/muscle tension, and can have a calming effect on the brain as well.

Do you have a sense of what your triggers might be? If you can identify and avoid any of them, that can help too.

 

[MuayThaiFighter]

Nak is always right on the money.

For me my situation has been going on long before I ever had a convulsion. At the age of 16 I had this "mystery" problem that came out of the blue. Had neuro tests and they couldn't figure out what it was. It sounded a lot like what you describe. Luckily it started to fade and I felt back to my norm. Regardless I got these "events" each year and it was exactly what I feel like now after I have a string of seizures.

When I turned 21, one night the same events happened and it just started getting worse as I got older. But on a positive note, when I found the right treatment, the seizures decreased a lot. I'll be thinking of you and hoping you get some answers, it has been to long that you've be left in the dark with this. I'm sorry my friend.