hi to all iam trying to see how long it takes other people to feel better after their seizures it usually takes me 3 days for each grand mal seizure maybe more depending how it was. this is my 1st time on a forum as stumbled across it earlier whilst trying to figure this question out as i dont know anybody else with epilepsy.im 49 now and have had epilepsy for 20 years now i have violent Tonic-Clonic (Grand Mal) Seizures 3 to 4 times per month and Absence Seizures (Petit Mal) most days and loose myself lots of time without noticing for the last 20 years have had many different types of medication iam now on levetiracetam 2500mg per day and also lacosamide 400mg per day and i dont feel any different to when it was diagnosed ;( ty to anybody that can help
how long to feel better again
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Hi Dazz,
Welcome to CWE! I've had absence and complex partial seizures for 46 yrs. and at one time I was having absence status seizures where I would be out of it for anywhere from 30 min to 2 hrs. and I was wiped out for about 2 days then my Dr. changed my meds and the status seizures stopped. If I may ask have you been keeping track of your seizures in a journal or write them down on a calendar? My neuro told me to do this yrs. ago and they found a pattern in my seizures I always have them the 1st and 3rd week of the month. I'm 55 now and I noticed that when I went through my change my seizures decreased a little but what really helped me a lot was the medical marijuana (CBD Oil) you may want to give it a try. My neuro suggested it to me after trying over 10 different seizure meds and having surgery to reduce my seizures. If you are interested check out healthyhempoil.com you can buy it on line and they deliver it to you by mail. I buy the mouth spray and it works great.
Take my word everyone here has been a great help to me and they are great supporters. I wish you the best of luck and May God Bless You!
Sue
Welcome to CWE! I've had absence and complex partial seizures for 46 yrs. and at one time I was having absence status seizures where I would be out of it for anywhere from 30 min to 2 hrs. and I was wiped out for about 2 days then my Dr. changed my meds and the status seizures stopped. If I may ask have you been keeping track of your seizures in a journal or write them down on a calendar? My neuro told me to do this yrs. ago and they found a pattern in my seizures I always have them the 1st and 3rd week of the month. I'm 55 now and I noticed that when I went through my change my seizures decreased a little but what really helped me a lot was the medical marijuana (CBD Oil) you may want to give it a try. My neuro suggested it to me after trying over 10 different seizure meds and having surgery to reduce my seizures. If you are interested check out healthyhempoil.com you can buy it on line and they deliver it to you by mail. I buy the mouth spray and it works great.
Take my word everyone here has been a great help to me and they are great supporters. I wish you the best of luck and May God Bless You!
Sue
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Hi dazz -- welcome!
For me, recovery time seems to depend on how intense the seizure is, when it happens (in bed vs. during the day), and what my general state of being is when the seizure hits. Sometimes it's been a matter of hours, sometimes it's been more like a week.
For me, recovery time seems to depend on how intense the seizure is, when it happens (in bed vs. during the day), and what my general state of being is when the seizure hits. Sometimes it's been a matter of hours, sometimes it's been more like a week.
thankyou for your answers guys ive had many different types of tablets and it never changes for the better only seems worse i just wasnt sure how long most took not knowing others.sue i did used to keep a diary when i was with my partner as she helped me as if i have absences i dont realise ive had them most of the time and live alone just go on what people tell me that id had 1.i know when my grand mal seizures have happened as i then feel like death warmed up for days,weeks depending how many i have close to each other some times with broken bones dislocated parts of my body and a tongue the size of a giraffe lol. i do have cannabis from a freind for the cbd in the evening to try to relax i dont in the daytime as i feel i ll fall asleep all day and end up doing nothing i will try the spray as its now available in some uk shops now unlike the cannabis. i joined this site to try and give myself some motivation as its dropped alot over the last year and feel very fed up about this life im living lately and you all seem very much better at coping than i have with your motivation ive been thinking i have such a bad time not knowing others not that my family and freinds dont help but dont actually know the feelings i have as its hard to talk to say how rubbish i feel at times and lock myself away saying im busy doing things i just feel i would be used to it after this long. my new tablets have made me very emotional in many ways and living alone doesnt help that even though i dont mind living alone as my family arent far from me anyway sorry for the long reply its nice to get it out my head ty sue and ty nakamova to for you messages x
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Depending on how bad the seizure is usually depends on how long it takes me to feel better. I have all types of seizures - auals to grand mals.
Usually after an aura I'm pretty much ok and it doesn't leave any effect on me. For a partial seizure I'm wiped out afterwards and I fall asleep for a few hours and I might have a headache. Depending on how long the partial lasted I might be tired and sleep for the next day or two. After a grand mal I'll be tired for at least the next two days. If I've had seizures close to each other, two in one day or one two or more days in a row, I'm pretty tired the next few days.
Like you I don't know that I've had a seizure unless there is someone there to see it happen. I like to do things during seizures so if something isn't right I know that I probably had a seizure that someone wasn't there to see.
Once I texted someone, who's number I don't even know why was in my phone, about 5 times at 7 in the morning and the text was nothing but random letters. I came to when the phone was beeping letting me know I had a text and it said "Who is this????" I do crossword puzzles and there have been many times that I've scribbled all over a page or ripped it up during a seizure. I usually don't go to bed until 11pm but just the other night at about 9pm I must have thought it was bedtime because I came to just as I was starting to get in bed with all my clothes on. I went into the rest of the house and all the lights were on, I must have thought I was turning them off. Lately I've been getting my times and time frames mixed up. For example I'll look at the clock and see it says 2, it's actually 2pm but I think it's 2am. I'll come to in bed with my clothes on or on the couch with my pj's on. I've chewed the inside of my mouth and/or tongue before before seizures. If I have a really bad headache then I probably had one.
Try to start keeping a diary again, it's very helpful when you go to the dr. I don't know if you do things like I do during a seizure but if you do then it might help you know when you've had one. If you think you've had a seizure because something happened that you know you do during a seizure write it down.
Meds can be very frustrating! It might take you a while to find some that work good for you but after taking them for a while they might stop and you have to start the process all over again. Does you're neuo know you are taking the cannabis? If things have stated getting worse since you started then there could be some sort of interaction between that and the meds you are on or it might just not be working for you?
Usually after an aura I'm pretty much ok and it doesn't leave any effect on me. For a partial seizure I'm wiped out afterwards and I fall asleep for a few hours and I might have a headache. Depending on how long the partial lasted I might be tired and sleep for the next day or two. After a grand mal I'll be tired for at least the next two days. If I've had seizures close to each other, two in one day or one two or more days in a row, I'm pretty tired the next few days.
Like you I don't know that I've had a seizure unless there is someone there to see it happen. I like to do things during seizures so if something isn't right I know that I probably had a seizure that someone wasn't there to see.
Once I texted someone, who's number I don't even know why was in my phone, about 5 times at 7 in the morning and the text was nothing but random letters. I came to when the phone was beeping letting me know I had a text and it said "Who is this????" I do crossword puzzles and there have been many times that I've scribbled all over a page or ripped it up during a seizure. I usually don't go to bed until 11pm but just the other night at about 9pm I must have thought it was bedtime because I came to just as I was starting to get in bed with all my clothes on. I went into the rest of the house and all the lights were on, I must have thought I was turning them off. Lately I've been getting my times and time frames mixed up. For example I'll look at the clock and see it says 2, it's actually 2pm but I think it's 2am. I'll come to in bed with my clothes on or on the couch with my pj's on. I've chewed the inside of my mouth and/or tongue before before seizures. If I have a really bad headache then I probably had one.
Try to start keeping a diary again, it's very helpful when you go to the dr. I don't know if you do things like I do during a seizure but if you do then it might help you know when you've had one. If you think you've had a seizure because something happened that you know you do during a seizure write it down.
Meds can be very frustrating! It might take you a while to find some that work good for you but after taking them for a while they might stop and you have to start the process all over again. Does you're neuo know you are taking the cannabis? If things have stated getting worse since you started then there could be some sort of interaction between that and the meds you are on or it might just not be working for you?
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Hi valeried
yes my Dr knows that i take cannabis in the evenings as an extra to my meds and wasnt worried as i dont take lots he said just some in the evening to relax myself and stop my head from over thinking to much about everything
i never seem to know when 1 is coming to me that is always an after if i know and usually because im battered and bruised in some way from the grand mal's and wake up on the floor somewhere which is never to fun when im out the house and end up in an ambulance or in a shop but i dont want to stop my life completely by feeling i have to stay in all the time i struggle enough as it is when its 3 or 4 days at a time average of 2 to 4 times a month at the moment.
we sound similar with how we are like you i do strange things people tell me making noises and talking rubbish to people that are around and sometimes i go out the house when i certainly shouldnt go out if nobodys about to tell me not to i even had the police at 9am pick me up off the floor in the street thinking i was an alcoholic as i had had a seizure walking down the street talking to my partner and didnt notice she was shouting down her phone trying to make them hear her which took quite a while she said losing memory about days and times is very common for me who ive seen and who i havent my tablets come in sealed morning and night time packs sent to me by post just so my familt know ive got them and taken them both times as my dr said he wanted to split what i take to morning and evening to see if that would help a few years ago im not so sure it did but the packs certainly help me keep track of what ive took but do still forget the odd time and realise the following day and have a little case i keep the forgoten 1s in so all can see if im asked maybe once a month i forget
i have now joined seizuretracker.com as i saw somebody mentioned it on here so i will start that from now and hope that helps some how i just want to feel better with myself as right now is quite a low point at the moment and want to feel like im getting somewhere with this as i dont realy want to go see my local dr about a depression problem but maybe its time i should im just not sure if iam or just abit fed up
ty for you reply this is all helping me x
yes my Dr knows that i take cannabis in the evenings as an extra to my meds and wasnt worried as i dont take lots he said just some in the evening to relax myself and stop my head from over thinking to much about everything
i never seem to know when 1 is coming to me that is always an after if i know and usually because im battered and bruised in some way from the grand mal's and wake up on the floor somewhere which is never to fun when im out the house and end up in an ambulance or in a shop but i dont want to stop my life completely by feeling i have to stay in all the time i struggle enough as it is when its 3 or 4 days at a time average of 2 to 4 times a month at the moment.
we sound similar with how we are like you i do strange things people tell me making noises and talking rubbish to people that are around and sometimes i go out the house when i certainly shouldnt go out if nobodys about to tell me not to i even had the police at 9am pick me up off the floor in the street thinking i was an alcoholic as i had had a seizure walking down the street talking to my partner and didnt notice she was shouting down her phone trying to make them hear her which took quite a while she said losing memory about days and times is very common for me who ive seen and who i havent my tablets come in sealed morning and night time packs sent to me by post just so my familt know ive got them and taken them both times as my dr said he wanted to split what i take to morning and evening to see if that would help a few years ago im not so sure it did but the packs certainly help me keep track of what ive took but do still forget the odd time and realise the following day and have a little case i keep the forgoten 1s in so all can see if im asked maybe once a month i forget
i have now joined seizuretracker.com as i saw somebody mentioned it on here so i will start that from now and hope that helps some how i just want to feel better with myself as right now is quite a low point at the moment and want to feel like im getting somewhere with this as i dont realy want to go see my local dr about a depression problem but maybe its time i should im just not sure if iam or just abit fed up
ty for you reply this is all helping me x