How's everyone? My life so far

[momof5kids]

I've been very busy with my family and it's been stressful. I've had to deal with two different bullying situations @ two different schools which one got resolved and the other my son got jumped and I had to miss my medication cause the doctor had to transfer him to the hospital just to make sure he wasn't hurt to bad, but he turned out to be fine. So I ended up go to the school and givin them a piece of my mind and lettin them knw how I felt and then comin to discover some other things bout the school so I put in a complaint cause the kids were tellin me some things so now thanks to me they no longer have to go through that. But on that note I've think I need to make an appt wit my neurologist cause my hands have been tingling and goin numb and I can't take it. So I also wanna knw how can I tell my family and friends bout my epilepsy and my the ppl that do knw bout it don't understand how I'm feeling when I try to tell bout my feelings. I hear that's life and then I wanna scream.

 

[SlimBlue]

It's very hard for anyone to empathise a mile walk in another's shoes, no matter how close they are, and unless you share a similar problem it can be extremely difficult to fully describe it to them.

That's a major design flaw in everyone on the planet, and I guess the main reason why there are so many support groups for various things.

Having said that, you should be able to at least get sympathy and compassion from your closest, and indeed any decent person. I found the easiest way to tell people about it is just be open and honest and down to earth.

Laughter also helps a lot- not only in describing it, but coping with it yourselves.

 

[momof5kids]

I'm gonna try to work with that and see wwhat happens.

 

[SlimBlue]

Go for it! It's not fair you have to hide away and suffer in silence. Cards on the table, this is my life..

And laughter really is the best medicine- it lightens the mood so people that don't like to talk about emotional things find it easier, and comedy helps people kind of understand it more- almost like listening to a long joke

If you can make them not only see the hidden difficulties you have to face, but then also show them that you can actually laugh at it and show them how strong you can be, well, I've found that can be great for when talking to family members who just don't know how they should react.

But for empathy? CWE is always gonna be the best place for that. It's where I come for my fix.

I don't expect anyone else to understand, no matter how close we are. But there's nothing wrong with needing them to show you sympathy/compassion instead, and the first step of that is dialogue..

 

[George__]

:hugs:

Get better

I love this forum

 

[Belinda5000]

Had it out with my mother who was treating me like a child.
This was first time I'd seen her in 9 years.
She's hopeless.

 

[George__]

Had it out with my mother who was treating me like a child.
This was first time I'd seen her in 9 years.
She's hopeless.

You'll always be her little girl, she loves you......

 

[petero]

It's very hard for anyone to empathise a mile walk in another's shoes, no matter how close they are, and unless you share a similar problem it can be extremely difficult to fully describe it to them.

That's a major design flaw in everyone on the planet...

...and ironically, I recall hearing, one of the newer facets of epileptology - the merging between brain and a real computer interface. Seizures are after all a way to become "non-human" and "Borg" (ie. that brainwaves exist beyond the human range, and have an interface/threshold). It'll be through seizures that we get real "smart technology" - It'll probably be through a psychogenic deja vu that we boot up our ismartphones in maybe five-ten years. Thanks to epileptics.