I am so happy to have found a group of people who are so knowledgeable about seizures. I was just diagnosed this past April with seizures. I am 67 years old and have had seizures for the past 40 years but until recently they were few and far between so I never went to a doctor until now. When I explained my history to him he is the one who informed me that what I thought were anxiety attacks were actually seizures. I like my doctor and he has put me on Keppra starting with a low dose that has now grown to 1500 in the am and pm. I was having too many side effects at that dose so we decided that I could decrease to 1250 in the am and pm. I am on day 4 of decreasing. I am having some small seizures in the mornings. I want to ask if that is normal? To be honest, I would rather deal with small seizures than the depression and irritability that I was having at the higher dose. Can anyone tell me how to know if a medication should be changed? And do all the seizure medications act the same? I was told I have focal seizures which, after reading some of your stories I feel blessed. I have been praying for those of you who have had such a hard life with this terrible condition. My focal seizures make me weird but I am aware the entire time. My eyes get spacy and I can't talk so I space out and stay still until it passes. I have had only 3 seizures in the 40 years that have made me fall and be really weird. I read about a VNS. At what point would someone choose that? If no medication worked?
Thank you for your time and tolerance in reading this. I am just so naive about this. The last few months have been hell. Trying to find which medication (I have only tried one) and at what dose I can tolerate. This could easily take years. Am I right?
Thank you for any insight you can give me. I truly appreciate it,
Peggy
Thank you for your time and tolerance in reading this. I am just so naive about this. The last few months have been hell. Trying to find which medication (I have only tried one) and at what dose I can tolerate. This could easily take years. Am I right?
Thank you for any insight you can give me. I truly appreciate it,
Peggy