I am so scared all the time

[valeriedl]

Seeing a psych could help. Alot of times you feel you can tell them things about yourself or what's going on that you may not want to tell other people and the two of you can discuss it. In doing this you maybe able figure out a way to calm yourself when things start.

 

[KeithH]

Ill think about that, thanks.

 

[doihaveepilepsy]

Hi i can totally relate to what you are going through i have had epilepsy now for 6 years i have had every test available and seen countless neurologists, I have tried ten different epilepsy medications in different combinations most which i have reacted badly to in some way or another meaning they had to be stopped.
I tried topirimate, oxycarbemazapine, lamictal, clobazam, trileptal, pregablin, sodium valporate, keppra, zonisamide, phenytoin, pheynabarbatone. (oh and midazolam for emergencies)

Still having seizures most leading to status epilepticus i have been in intensive care 4 times already this year on a life support machine...every day is a worry as u never know when a seizure is going to happen, i dont not get an aura either as far as i am aware altho alot of the time i cant rember periods of time prior to the seizure.

Last year i had a really difficult time, i let everything reguarding epillepsy and its restrictions build up which caused a massive amount of stress (i was on keppra at the time which had a dramatic effect on my mood) I eventually gave in an took an overdose, that failed so i ran from the hospital and tried to jump from a bridge..i was restrained and taken to the hospital again and sectioned under the mental health act for 3 months i made many attempts to take my own life but you are constantly watched.
I acted as though i was well and 3 months later i was discharged on new medication the day after being released i took 200 tablets diff ones for epilepsy and other things, i was taken to hospital where i refused to be treated...not long after arriving at hospital i fell uncontious and had to be put on life support, remained on this for 3 days once deemed well enough to leave hospital i was again sectioned under the mental health act for a further 3 months..I am now being cared for in the community by the mental health services and i am much better.

the thought of seizures still scares me, but i have been through alot if i can get thru that surely i can get thru anything x

 

[Katie]

Just remember there are psychiatrists and psychologists. I would get an accurate diagnosis, if there is one, from a psychiatrist before you talk to a therapist. Therapists need to know what they're dealing with.

I would talk to a psychiatrist about your anxiety and depression. He or she will be able to decide if it's solely due to your epilepsy (not likely, because you mentioned you had it before, even though it might be amplified by your epilepsy).

I think it will help you. Just remember that starting medications is a long road. And they don't all work all the time the first time around. You know this with epilepsy. It's taken me years (and I'm still trying) to find meds that work right for me.

I wish you the best of luck and I'm sure there are plenty of crazies (as in, actually diagnosed ones) here to help you along the way

 

[gowings83]

lol... just one more unexpected benefit of having seizures. I can just see someone with their Xbox Kinect having a t/c seizure...... I think they'd definitely WIN!!!! They'd be the ultimate gamer. (I, myself, do not have a kinect)

It's all gonna be okay, kiddo.

I've had a Kinect since August (beta tester here :woot: ) and have had a few seizures while playing, amazingly I've won a game of table tennis. Most of the time I've lost the games, especially running or volleyball, it just doesn't work very well with those games. I blacked out while playing bowling against my wife, she showed me the score card, 6 straight strikes.