Kate
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First of all, with the Keppra, Topamax, and Valium, I pretty much have no feelings, and this Christmas hasn't felt much like Christmas. I'm kind of sad, because we are leaving on our cruise so soon.. and I should be excited, yet, the only emotions I have towards it are a bit of fear.
The point of this post..
I have been having so much trouble sleeping. They have tried me on literally everything. The 20 mg a night of Ambien didn't work, the Ambien CR didn't work, and now, the most recent medicine, the Halcion, is not working. I take .25 mg of Halcion at night, and I'm lucky to get four hours of sleep. And I mean lucky.. as for last night, I think I maybe had two and a half hours.
So, Christmas Eve, it didn't come as a shock when I had a seizure. It was actually the smallest one I have ever had, and the first one I have had that didn't last long. I had finally fell asleep for the first time in quite some time, and I woke up and had a small one. I must have fallen asleep right after it, and than woke up later.
The only reason I really knew I had one was because I woke up an hour after laying down with the type of headache I always get after having a seizure.. My neurologist always has me go to the ER after I have a seizure, no matter how long they last, because I am new to them.. but my doctor recently gave me morphine and extra valium, which is what they end up giving me in the hospital, so I was able to stay home.
Anyway, I am the youngest (19) in our household.. so we decided to open presents Christmas Eve after I woke up since it was about 9 PM, that way we could sleep in Christmas morning before we head to our Grandparents for Christmas dinner.
Well.. I was still in major pain Christmas morning, so my mother gave me one more morphine. My doctor told me I am allowed to take two morphine pills (spread apart of course) after my seizures to help me deal with the pain.
I guess it was the morphine making me emotional, or just the fact that my seizures aren't under control, or the lack of sleep that's driving me nuts, or that we are leaving to go on a cruise in about four hours and I feel so stressed and so scared sometihng is going to happen... but I just started bawling in the middle of Christmas dinner!
I felt really silly after. My family understood. I went back to one of the den's and took a nap, and my headache was finally gone when I woke up.
Today I called my neurologist and told her about it, and she said to call my sleep doctor to have them change or up my medication before we leave on our cruise. (They can call in a prescription before we leave town - or possibly just up the sleeping medicine I'm taking.)
I'm at my wits end. I HAVE to get on a better sleeping schedule. This is just ridiculous. I'm on Valium three times a day, so there is no way it is anxiety causing the insomnia. I have pain medicine, so it's not pain keeping me up..
I have to wait 10 more minutes before the sleep doctor is in, and than I'll call and hopefully they can figure things out.
Please pray for me everyone, we drive to Alabama tonight and depart from Mobile tomorrow. Wish my family and I luck that we have safe and healthy travels. I'm sure our hotel tonight will have wireless internet.. so I'll be on one more time before we head out on the ship.
I hope you all had Happy Holidays and have a wonderful New Years!
The point of this post..
I have been having so much trouble sleeping. They have tried me on literally everything. The 20 mg a night of Ambien didn't work, the Ambien CR didn't work, and now, the most recent medicine, the Halcion, is not working. I take .25 mg of Halcion at night, and I'm lucky to get four hours of sleep. And I mean lucky.. as for last night, I think I maybe had two and a half hours.
So, Christmas Eve, it didn't come as a shock when I had a seizure. It was actually the smallest one I have ever had, and the first one I have had that didn't last long. I had finally fell asleep for the first time in quite some time, and I woke up and had a small one. I must have fallen asleep right after it, and than woke up later.
The only reason I really knew I had one was because I woke up an hour after laying down with the type of headache I always get after having a seizure.. My neurologist always has me go to the ER after I have a seizure, no matter how long they last, because I am new to them.. but my doctor recently gave me morphine and extra valium, which is what they end up giving me in the hospital, so I was able to stay home.
Anyway, I am the youngest (19) in our household.. so we decided to open presents Christmas Eve after I woke up since it was about 9 PM, that way we could sleep in Christmas morning before we head to our Grandparents for Christmas dinner.
Well.. I was still in major pain Christmas morning, so my mother gave me one more morphine. My doctor told me I am allowed to take two morphine pills (spread apart of course) after my seizures to help me deal with the pain.
I guess it was the morphine making me emotional, or just the fact that my seizures aren't under control, or the lack of sleep that's driving me nuts, or that we are leaving to go on a cruise in about four hours and I feel so stressed and so scared sometihng is going to happen... but I just started bawling in the middle of Christmas dinner!
I felt really silly after. My family understood. I went back to one of the den's and took a nap, and my headache was finally gone when I woke up.
Today I called my neurologist and told her about it, and she said to call my sleep doctor to have them change or up my medication before we leave on our cruise. (They can call in a prescription before we leave town - or possibly just up the sleeping medicine I'm taking.)
I'm at my wits end. I HAVE to get on a better sleeping schedule. This is just ridiculous. I'm on Valium three times a day, so there is no way it is anxiety causing the insomnia. I have pain medicine, so it's not pain keeping me up..
I have to wait 10 more minutes before the sleep doctor is in, and than I'll call and hopefully they can figure things out.
Please pray for me everyone, we drive to Alabama tonight and depart from Mobile tomorrow. Wish my family and I luck that we have safe and healthy travels. I'm sure our hotel tonight will have wireless internet.. so I'll be on one more time before we head out on the ship.
I hope you all had Happy Holidays and have a wonderful New Years!