I had to laugh at the Irony

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epileric

epileric

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I"m so excited..... After waiting a total of 6 months, I got a call this morn & the psychiatrist giving me the Neurofeedback Can see me Mon. Morning.

I was so excited I sat down to tell everyone here when suddenly I realized that I couldn't type because all that excitement caused a seizure. All I could think during the seizure is that this must be the epitome of irony, having the excitement from getting to what is supposed to help my E. trigger a seizure. :roflmao:

Well I'm in a good mood now but I would like to ask anybody who has gotten NFB treatment if there's anything I should know to do/bring for the first session that would help?

I also intend to keep track of my treatments in the history book (in the library) so I"ll see you guys there.
 
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epileric said:
I"m so excited..... After waiting a total of 6 months, I got a call this morn & the psychiatrist giving me the Neurofeedback Can see me Mon. Morning.
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Awesome!

epileric said:
Well I'm in a good mood now but I was would like to ask anybody who has gotten NFB treatment if there's anything I should know to do/bring for the first session that would help?
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Not really. :)

epileric said:
I also intend to keep track of my treatments in the history book (in the library) so I"ll see you guys there.
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Great. That will be informative to follow along. :)
 
Wooohoooo!!!

Yeah for you!!!!

You're right, it IS very ironic, but I AM very happy for you!!!
 
Fabulous!

My suggestion is to bring an open mind and heart and it can only work for you! That's what I brought on my first day:woot:
 
Thanks everyone for your support

I"ll let you know what happens Mon. after my first treatment.
 
Very excited for you Eric.
My only suggestion is don't run 10 miles before your therapy. You will fall asleep.
 
What can one say?

I can't believe what happened. I had insomnia last night so it was finally 3 AM before I got to sleep. I woke up 4 time that I remember (not uncommon recently) I was imagining myself having a sz at during the NFB treatment since I"d probably be so tired. Finally when I'm dead asleep the phone rings at 7 AM. It was the docs office telling me they had to postpone the appointment since the doc was flying in & his plane was held up. Now I'm overtired & can't get back to sleep. I figure I"ll try to get an extra hour or so in after spending some time here.
 
Hi There

Oh bless you, I so know how you feel, I've been right up to getting on the train to go to London to see the doc, and had a call saying it's postponed! I had lots of NFB preceding both my ops, but to be honest, they gave me it there and then, after I'd completed the tests, it was amusing trying to stare at and remember then draw a series of geometrical shapes, then a list of male and female faces, they only told me what I already knew, I have a crap memory!!

Good luck to you mate, let us know how it goes right? We're all here for each other, and that makes it all so very special being on CWE!!
Lotsalove

Elaine x
 
Thanks so much Elaine, I'm trying not to worry too much about it. Even if I get in on Wed. 3 working days is pretty quick for a medical appointment here.

Also thanks for posting about the tegretol. I've been on it for over 30 years & have pains in my shoulders which I or the doc couldn't figure out what might it might be. Didn't know about not absorbing the Vit. D either.
 
Pill Popping!!

Hiya

No probs about mentioning the Tegretol, it just makes me wonder how many more of us have been suffering, and I can't believe I've never ever had it mentioned by any of my docs, we are supposed to have our bone marrow density checked on a regular basis, and it makes me wonder what else long term use of these drugs is doing to us? I've been on them for almost 25 years, and it worries me when I pop them in my mouth, especially as I love my red wine!! No other bad habits, just the wine. I have taken Tegretol, and most of the others during that time, I'm going to see if I can find out what the long term effects of Keppra and Trileptal are, which AED's are you on?
Sorry to hear you have been having pains too, but it just shows that there is something in it doesn't it? I'll let you know if I come across anything else, pretty scary though eh? Hope all is well with you otherwise mate?

Cheers

Elaine xx
 
Relax Eric.
Seizure activity would most likely show up on the EEG readout, if you were to have one in the chair. Seems this would be helpful information for them to be able to effectively help you.

Also, if you have unusual sleeplessness after the treatment, you should inform the NFB practitioner. This is an indication that they need to change the frequency level. Agitation is another one that should be reported.

Just continue to keep a journal, only be more detailed.
 
epileric said:
Also thanks for posting about the tegretol. I've been on it for over 30 years & have pains in my shoulders which I or the doc couldn't figure out what might it might be. Didn't know about not absorbing the Vit. D either.
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NOTE = Dilantin is hard on the bones as well. Calcium with Vitamin D is a good idea for most of us.
 
RobinN said:
Relax Eric.
Seizure activity would most likely show up on the EEG readout, if you were to have one in the chair. Seems this would be helpful information for them to be able to effectively help you.
Click to expand...

:ponder:Hmmmm, well so far I've been lucky. I got to see a neurologist quickly because I had a sz in the doctors office. Then on my first visit to the neurologist I had a sz in his office. Let's see if I can go for 3 out of 3.
 
It was a Disappointment Appointment

Apparently something along the line of communication between me & my neurologist wasn't accurate. Either he mis-spoke about the guy he sent me to or I misunderstood. It was nice to see a neurologist-psychologist but he knew nothing of treating me with neurofeedback until I finally brought it up.

Actually he seemed impressed that I would want to do something other than take more pills (his first recommendation) & said he would look around for someone who can give me NFB. I'm just a bit frustrated because the person he called back with I already knew about & I didn't need to wait 6 months for that. He said he'd keep looking but I can do that research myself. It also means that it's not covered by medical like the neurologist-psych was so I'll have to see what I can do about that.

He also suggested looking into cognitive behavioural therapy, something which I know a little about but not much.

The quest continues........
 
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