I hate E! I'm embarrassed!

Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!

Yaaaaaay......BRAIN.....I'm sooooo glad you're back - I've missed you :flowers:

You went 53 days before it started ?....that's an achievement in my books already....keep it up - we want another 60 days AT LEAST before next time, or better still FOREVER !

Well, I hope you're loooads better now - make a brew, put yer feet up, and keep posting on here. :brock:
 
TeeTees said:
Yaaaaaay......BRAIN.....I'm sooooo glad you're back - I've missed you :flowers:

You went 53 days before it started ?....that's an achievement in my books already....keep it up - we want another 60 days AT LEAST before next time, or better still FOREVER !

Well, I hope you're loooads better now - make a brew, put yer feet up, and keep posting on here. :brock:
Click to expand...

:huh:

No No... I think you misunderstood,
if my menses cycle goes beyond 36+ days
and doesn't start, I'm at a risk for a seizure.

If I go beyond 40+ days, I'm in danger for
multiple seizures and with Todd's
Paralysis aka Todd's Paresis.

Two months this year I did not have any
thing - March and November. But strangely,
Several months I had 2 cycles in one month?
That shows you just how unpredictable it is.
But it's been like this since I've first started
when I was just a little over 9½ years old but
before 10.

My Gynecologists quit on me!

:giveup:

Birth control pills to try to put me under some
sort of control was fruitless. Hysterectomy
was considered many times. Had experienced
ovarian cysts far too many to count and have
had ovarian cyst surgery removal 4 times. Out
of 12 pregnancies, 11 were miscarriages, nearly
lost our son due to complications, 2 weeks over-
due; went into labor and all the works and then
just stopped. They tried to induce me just a little
bit without inducing seizures instead they induced
seizures and never went into labor anymore. Had
to have C-section. Life of a woman with epilepsy.
(my son is the 3rd child as I had 2 miscarriages
before he came along and Doctors were so sure
I was going to lose him)
 
brain said:
:huh:

No No... I think you misunderstood,
if my menses cycle goes beyond 36+ days
and doesn't start, I'm at a risk for a seizure.

If I go beyond 40+ days, I'm in danger for
multiple seizures and with Todd's
Paralysis aka Todd's Paresis.
Click to expand...

:embarrassed:

I HAVE COMPLETELY mis-understood you......Sorry Brain

I thought you were referring to your E cycles, and that you worked out you hadn't had a seizure for 53 days.

(now where's the smilie where he puts his foot in his mouth)
 
Hi Brain

I'm really sorry to hear that you've had a bad episode!! I know how you feel, I have actually fallen onto a trash bin before, the one in our kitchen has a huge dent in it, from me falling on it one day during a bad wobbler! I hope you are feeling a wee bit better by the time you read this!

I know how much I hate having epilepsy, but the way I deal with it is to think of all the folks in the world with so much worse things to deal with than me. When I was in Bangkok, I saw a young girl singing in the street, she held a out a tin and was asking for money, when I got closer to her, I could see that not only was she blind, but she actually had no eyes, just skin over the sockets, I think to be blind would be the worst disability!!!!! I just love life so much, architecture, nature, world travel, and to not be able to see anything is unimaginable! I filled up with tears, walked up to her, took her wrist, told her that I thought her singing was totally beautiful, and put some money in her little pot. I promised myself there and then, that I would never forget her, and I haven't, this was Dec 2006.

My dad's partner is battling cancer for a second time, I'm in awe of her and how she deals with it! So what, I go wonky every so often, and dribble and talk a load of cobblers?! Most blokes do that every Friday and Saturday night!! I love life, and I so have to laugh at my epilepsy, it gets me through!!

I really do hope you are on the mend, you must have one special son eh for him to look after you like that, bless you both!

Best Wishes

Elaine xx
 
Well I'm glad you ladies are ok.Dishes strike for the Ladies! Or do it together. Good for your son Brain.I know how you feel about hating E though. I hate it sometimes. it embarrasses the fdklja;sdjdjafj out of me.
 
You must log in or register to reply here.
Back
Top Bottom