I have another question....

Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!

Messages
100
Reaction score
0
Points
0
Seems like the more that I read up on epilepsy, the more questions that I have. Some of them I can find answers to easily on the web, and some of them are a little more illusive. My question at this time is this: What is the difference between epilepsy caused by injury to the brain (ie. scar tissue, which I have, or brain tumors etc.) compared to epilepsy caused by birth defects and/or unknown causes?
 
With TBI/tumor/scar tissue, there is an identifiable physical focal point which may make one a candidate for surgery. With the others, there is less likelyhood that surgery is an option. That's the bottom line as I see it. I'm sure there are more technical aspects to it though.
 
Yet, therapy such as neurofeedback have positive results even with an injured brain. It helps the area of the brain surrounding the injury to work more effectively.
 
I have a hard time with the surgery "fix" being logical to me. Creating more scar tissue to remove scar tissue doesn't seem like it's solving anything. Are there any success stories that you know of where surgery completely stopped seizures?
 
Gamma Knife Neurosurgery is one avenue to look into

I have a hard time with the surgery "fix" being logical to me. Creating more scar tissue to remove scar tissue doesn't seem like it's solving anything. Are there any success stories that you know of where surgery completely stopped seizures?

There have been some success stories where
there have been individuals who have "No
More Seizures". One fact that the Neuroscience
has found is this:

The earlier they catch it and treat it, the better
the chances!

For children - the sooner, the better!

Hence why they have placed the emphasis about
"Time is critical", for they have learned that delays
is only making things worse.

But this does not pertain to everyone however;
as for scar tissues, have you looked into Gamma
Knife Radiology type Neurosurgery
? Do some
research in that area - there's been success in
this field and avenue; but I haven't read everything
into depth in the broad perspective
, but I'm sure
if you'd look further into Gamma Knife Neurosurgery,
you'll find more information specifically, since you
know more about yourself than I do - and you might
want to consult with your Neurologist or Epileptologist
about this avenue.
 
Thank You...

...for the input. I am going to read up on Gamma Knife surgery and maybe being more informed on this will help me to make better informed decisions in the future. As for now my neuro wants to try to control my E with meds, without having to resort to surgery (his words), but all I see is the possibility of a lifetime of dealing with ups and downs and problems with seizures (I am still having them with meds so far) and nasty side effects of seizure meds.
 
i heard recently "pure-d-o" . Have you heard of that in regards to memory loss ?
 
Back
Top Bottom