I just need to get there.

Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!

M

morganomics

New
Messages
30
Reaction score
0
Points
0
I've been trying to do the right thing and I don't know what or where that is. I feel like there might be nothing left to try and that makes me feel really angry and down. I've been feeling really blunted and slightly dumb just unable to think correctly. I just want relief and a solution to my problems more than anything in the world. Being misunderstood or treated like a herd animal by the many doctors I've been to hurts more than anything in the world, they really make me feel hopeless. Every year that goes by that I don't get better feels like I've cheated death somehow that I either didn't hurt myself intentionally or that I didn't have an accident while in a post or interictal state. I will have brain surgery if necessary. I'm supposed to go to Indiana University's epilepsy clinic in Indianapolis this Wednesday and I'm hoping and praying for the best, but I feel things may go the same way they have with other doctors. The psychiatrist sends me to the neurologist and the neurologist sends me to the psychiatrist, I don't get better on the drugs they put me on or I get worse and my life continues to sink and I end up in and out of the ER and mental hospital. I'm soooo tired of living life this way and I feel if I don't get a solution soon bad things may happen again. It takes a lot of will power to just walk through the endless torture of mental illness and epilepsy, I just want relief and my mind back.Sorry so down, hopefully I'll be up soon. Thanks for listening.
 
Last edited:
Maybe once you go to the Epilepsy Clinic at Indiana University, they will direct you to the right doctors and medications/treatment. I have refractory TLE and have tried 10 drugs, had brain surgery, suffered severe depression and now have the VNS. I go to the U of Colorado Health Science Neurology Clinic and see an epileptologist and a psychiatrist. I'm doing much better now than I was a decade ago. Hang in there.
 
Dear friend situations never remain the same! if I think of myself few years back I was also very low, depressed and always dependent, but time has changed. And it will definitely for u too. Go to Indiana with ur all hope. Things will change. Be strong! We all are with U! Best of luck!
 
You must log in or register to reply here.
Back
Top Bottom