If you could go to any epilepsy center. . .

Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!

DinaHB

New
Messages
9
Reaction score
0
Points
0
If money, transportation, and any other hindrances were not a concern, what doctor, hospital, or epilepsy center would go to? Why? Thanks for your responses.
 
Which country..if uk then Kings Collage London it renown for epilepsy treatment
 
They come from States to it but best in world Is St piers Lingfield that's for children they defiantly come from America and Saidi go there
 
Just to add st piers got another name national something children with e.it is only place in world like this
 
I would go to John's Hopkins but that is rather far from where I live so I got the next best thing, a neuro trained at Johns Hopkins :)
 
I would go to Boston University and see the epileptologist that once treated me. She and her team were the best and at one time they were all on the Board of Directors for the National Epilepsy Foundation. She loves horses and once a month lets her child patients come to her stables and ride her horses. The best Dr. I've ever met.
IMO, it doesn't really matter where the doctor was trained, but how the doctor trains his/her patients. Is the dr. impatient or rude? Some doctors that come from Johns Hopkins or Harvard have attitudes. Just sayin...............
 
I would continue seeing the same dr(epileptologist) that I have now, at the U of MN, Fairview on the east bank of the Mississippi, really only because the 2,3 local neurologists I had seen in my hometown were confused with what to do with me. Granted the epileptologist seems to be too, but he at least has better ideas as to what might work for me other than giving me more and more meds at every appointment.
 
UCLA, the University of California in Los Angeles. First, we only live within the same state. Second, some friends of mine were sent from our hospital by ambulance and got quality care.
 
Bethesda ,MD were my husband had his surgery at the at the N.I.H
I was there for 6 months of senior in High school but they wouldn't touch me
 
I have been to Mayo. I can't recommend it. I have researched New York University Medical Center. I think they are better than most, but I don't think they could help me. I have a favorable opinion of John's Hopkins. I have read some of their papers.

It depends on where people are on their journey with E, as well as what people's expectations and desires are concerning doctors. I have not met a doctor who is not afraid of me. It should not be that way.
 
Last edited:
John Hopkins were in the eighties they started out the ketogenic diet again when is was forgotten as a treatment for epilepsy. Too bad dr Freeman died, may he rest in peace.
 
I would try Johns Hopkins, Massachusetts General, and the Mayo in Rochester. I've been to JH and the Mayo. I would also look at the Cleveland Clinic. It's worth the trip to any major medical center.

The Mayo offers the best testing and hospitalization have ever had or seen (I've been to quite a few hospitals.) However, they have a system which is largely depenent on your doctor to make things happen.

No matter where you go it really depends on your doctor. Certain hospitals attract the best doctors. The hospital provides the facilities, organization, and community.
 
No in America for me..Your doctors thriving money mad

This isn't fair. It's perfectly fine to complain about costs, and everybody does, but doctors and hospitals give a lot of discounted care. It's not that simple.
 
I would go to the epilepsy clinic at Vanderbilt (TN). They had an amazing team and my epileptologist was amazing - as was the team.

They managed to diagnose, treat me, and start me on a regimen that put my seizures in to control within the span of a few months. They were insanely engaged, polite, professional, and let me call them 24/7 and actually returned my phone calls.

I guess I'm going to get to compare them to the team at UMN.
 
Back
Top Bottom