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It was a very Interesting Visit. We got there, (my mother and I) and spoke with the PA first. I asked her my questions. The first question I had was...
1) the tingling I get in the beginning of a seizure, which I havnt had since March 2011, when I was taken off all seizure medications for my VEEG, could that be associated with an epileptic seizure?
Her response.... "No, it has nothing to do with seizures"....
Ok, well then why is it that when I google things, and look up simple partial seizures, it comes up with a list of symptoms, including tingling, pins and needles sensations? She had no explaination.
My next question....
2) why is it that if my dr believes what I had during the VEEG were non epileptic seizures, why havnt I had another seizure like that, since being put back on the Keppra XR? When my psych dr I saw, clearly explained to me that if the seizures I was having during the VEEG, were non epileptic seizures, the Keppra XR or any antiseizure drug, would not keep them from coming?
Her answer.... Well, what you had during the VEEG was indeed Non-epileptic seizures. But It did show activity in the background of Epileptic activity.
Me: Do you think its possible that what was seen on video was a simple partial seizure that was too deep in my brain to be picked up by the EEG, which would explain why I havnt had any more seizures like this since being put back on the Keppra XR?
Her response... "No, what you had was non-epileptic seizures. When your dr put you back on the Keppra, it was because of what he saw in the background of the EEG... the waves and spikes indicating epileptic activity. Once you were put back on the Keppra, your mind then told you that you were ok, and its all about the power of how you think. You knew you were back on the Keppra, and your mind was then trained for you not to have seizures". :roflmao: UMMM... NO. I dont believe that at all.
Then my dr comes in and we talk to him.
In March 2011, he tells my mother and I during the time I had my VEEG that because I didnt have a grand mal seizure or complex partial seizure during the VEEG, but only had some small activity seen, I would in no way have a grand mal or complex partial seizure again. He then said I could drive within 2 weeks after returning home... (which I didnt, because I knew better not to drive)
TODAY he tells us this....
Well, the reason I kept her on the Keppra was becasue of the seizure activity I saw in the background. I have the propensity to have a grand mal or complex partial seizure. Where as 15 months ago, he said I wouldnt ever have one since I didnt have either seizure during the VEEG.
The question to him also, was it is possible to not have the seizures be picked up my EEG if they are too deep within the brain?
His response, is No... if there were seizures there, the EEG would pick it up.
This dr specializes in so much, and he can tell me straight out that all seizures can and will be picked up by EEG, and that what I had during my VEEG stay was non-epileptic seizures, because they didnt register.
What I dont get is this...
when I went to the psych dr, she said it doesnt matter if the dr put me on one anti seizure medication, or three medications, no anti seizure medication is going to stop non epileptic seizures from coming. Because I was put back on the Keppra after having the VEEG, and my last known seizure like I had in my VEEG was the day after being released, which at the time I was back on the Keppra for 2 days, how is it that if those were in need non epileptic seizures, how could they just stop when the Keppra was added?
We didnt get much of a explaination. But instead, he said since Im being well controlled by the Keppra XR at 3000mgs, he wanted to leave me be and see me again a year from now.
I look at it this way....
I believe the seizures he saw me having during my VEEG was simple partial seizures too deep within my brain to be picked up on the EEG. By adding the Keppra XR, its controlled the seizures from coming and has stopped them since.
Thats the reason why Im doing so well.
But to the docs, they think its all about mind over matter. Im telling myself since Im on the Keppra, Im not allowing myself to have a non epileptic seizure.
OK................. op:
1) the tingling I get in the beginning of a seizure, which I havnt had since March 2011, when I was taken off all seizure medications for my VEEG, could that be associated with an epileptic seizure?
Her response.... "No, it has nothing to do with seizures"....
Ok, well then why is it that when I google things, and look up simple partial seizures, it comes up with a list of symptoms, including tingling, pins and needles sensations? She had no explaination.
My next question....
2) why is it that if my dr believes what I had during the VEEG were non epileptic seizures, why havnt I had another seizure like that, since being put back on the Keppra XR? When my psych dr I saw, clearly explained to me that if the seizures I was having during the VEEG, were non epileptic seizures, the Keppra XR or any antiseizure drug, would not keep them from coming?
Her answer.... Well, what you had during the VEEG was indeed Non-epileptic seizures. But It did show activity in the background of Epileptic activity.
Me: Do you think its possible that what was seen on video was a simple partial seizure that was too deep in my brain to be picked up by the EEG, which would explain why I havnt had any more seizures like this since being put back on the Keppra XR?
Her response... "No, what you had was non-epileptic seizures. When your dr put you back on the Keppra, it was because of what he saw in the background of the EEG... the waves and spikes indicating epileptic activity. Once you were put back on the Keppra, your mind then told you that you were ok, and its all about the power of how you think. You knew you were back on the Keppra, and your mind was then trained for you not to have seizures". :roflmao: UMMM... NO. I dont believe that at all.
Then my dr comes in and we talk to him.
In March 2011, he tells my mother and I during the time I had my VEEG that because I didnt have a grand mal seizure or complex partial seizure during the VEEG, but only had some small activity seen, I would in no way have a grand mal or complex partial seizure again. He then said I could drive within 2 weeks after returning home... (which I didnt, because I knew better not to drive)
TODAY he tells us this....
Well, the reason I kept her on the Keppra was becasue of the seizure activity I saw in the background. I have the propensity to have a grand mal or complex partial seizure. Where as 15 months ago, he said I wouldnt ever have one since I didnt have either seizure during the VEEG.
The question to him also, was it is possible to not have the seizures be picked up my EEG if they are too deep within the brain?
His response, is No... if there were seizures there, the EEG would pick it up.
This dr specializes in so much, and he can tell me straight out that all seizures can and will be picked up by EEG, and that what I had during my VEEG stay was non-epileptic seizures, because they didnt register.
What I dont get is this...
when I went to the psych dr, she said it doesnt matter if the dr put me on one anti seizure medication, or three medications, no anti seizure medication is going to stop non epileptic seizures from coming. Because I was put back on the Keppra after having the VEEG, and my last known seizure like I had in my VEEG was the day after being released, which at the time I was back on the Keppra for 2 days, how is it that if those were in need non epileptic seizures, how could they just stop when the Keppra was added?
We didnt get much of a explaination. But instead, he said since Im being well controlled by the Keppra XR at 3000mgs, he wanted to leave me be and see me again a year from now.
I look at it this way....
I believe the seizures he saw me having during my VEEG was simple partial seizures too deep within my brain to be picked up on the EEG. By adding the Keppra XR, its controlled the seizures from coming and has stopped them since.
Thats the reason why Im doing so well.
But to the docs, they think its all about mind over matter. Im telling myself since Im on the Keppra, Im not allowing myself to have a non epileptic seizure.
OK................. op: