My almost 13month old had his lattest appointment with his Nureo last friday. On the same day he had an event at child care while he was lying on the floor playing, eyes rolled back in his head several times and then they said it appeared that one arm stopped working, it was covering his eye, eventually he got frustrated and used his other arm to lift it off. The arm that hadn't been "working" came good a few minutes later.
Nureo said he is a bit concerned with the events my son has where he "disconnects" usually goes to the side or forward and then "comes back" dazed and also how he still pulls himself along the floor left arm tucked under and not using his left leg. He can though now pull himself to stand but again he mainly uses his right side. The Nureo asked had we noticed when he plays he uses his right arm and has not as much control of his left I said yes but isn't he just right handed. Of course I was told to early to be that dominant in one hand. Instead of seeing my son in 3months he wants to see him again in 4 weeks and on the same day he is scheduled for and EEG. He also has put him on and MRI list for the Children's hospital which he hopes will be done within 6months, in his letter from the appointment he says the MRI is looking for scarring on his brain.
Is there a good site I can look up re this. I thought if he had scarring on his brain wouldn't he permanently have disability all the time, I know he has problems constantly with his left side but how do his events/seizures relate with scarring on the brain?
Also any tips for his next EEG. Is it best to not let him sleep before? His EEG is mid morning and usually he would be due for a nap before hand. This is his 5th EEG and after the last one in Jan his Nureo said he probably wouldn't need another yet he has scheduled another 2months after his last.
Thanks
Donnajane
Nureo said he is a bit concerned with the events my son has where he "disconnects" usually goes to the side or forward and then "comes back" dazed and also how he still pulls himself along the floor left arm tucked under and not using his left leg. He can though now pull himself to stand but again he mainly uses his right side. The Nureo asked had we noticed when he plays he uses his right arm and has not as much control of his left I said yes but isn't he just right handed. Of course I was told to early to be that dominant in one hand. Instead of seeing my son in 3months he wants to see him again in 4 weeks and on the same day he is scheduled for and EEG. He also has put him on and MRI list for the Children's hospital which he hopes will be done within 6months, in his letter from the appointment he says the MRI is looking for scarring on his brain.
Is there a good site I can look up re this. I thought if he had scarring on his brain wouldn't he permanently have disability all the time, I know he has problems constantly with his left side but how do his events/seizures relate with scarring on the brain?
Also any tips for his next EEG. Is it best to not let him sleep before? His EEG is mid morning and usually he would be due for a nap before hand. This is his 5th EEG and after the last one in Jan his Nureo said he probably wouldn't need another yet he has scheduled another 2months after his last.
Thanks
Donnajane