LyLMyssChaos
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Hi everyone, I am new to the world of seizures, but so far my child had what we now believe to be a petit mal seizure on January 19 and then 3 more seizures (2 petit mal and 1 tonic-clonic) within an hour on February 23. We are seeing a pediatric neurologist tomorrow and so far, no one is discussing meds because his seizures are not frequent enough (which I think is good.)
My question is this; how do you get those involved in your child's life to take the condition serious enough to heed the safety measures the doctor's ask for? I don't want to restrict him too much, but I want them to understand that he does in fact have a medical condition that requires a certain level of extra precautions to be taken despite the fact that he is "ok" the majority of the time. I'm concerned about that little part of the time when he is not "ok."
My question is this; how do you get those involved in your child's life to take the condition serious enough to heed the safety measures the doctor's ask for? I don't want to restrict him too much, but I want them to understand that he does in fact have a medical condition that requires a certain level of extra precautions to be taken despite the fact that he is "ok" the majority of the time. I'm concerned about that little part of the time when he is not "ok."