Is Smacking of the lips only with Complex Partial seizures?

[momof3boys]

last night I woke up at around 4am with a feeling of complete fear. This lasted for a few minutes, and I was in tears. My heart began to race fast, my stomach felt like I needed to throw up, and once I sat up in bed, I had a tingling sensation from my waiste area up to my head. It felt like someone was poking me with alot of needles. At this time, my husband could tell something was going on... so he got up to turn the bathroom light on, and then he heard me smacking my lips... he didnt know what it was at first, but when he came back into the bedroom, he saw me turning my head to the right and I was smacking my lips. I dont recall doing it, but I do recall him trying to hand me a ativan, and by that time, my body was so stiff, I wasnt able to take it.

My mom has told me in the past that when Ive had a complex partial seizure, I either picked at my clothing, or smacked my lips while it looked like I was looking off... I just didnt know if smacking of the lips was only with complex partials or simple partials too?

I did make a call to my neuros office since the smacking of the lips is new... I havnt had that happen for years... when I was being controlled with Keppra and Carbatrol. Anyways, Im resting today. My mom took the kids to school for me, and I just want to stay in bed and try to get this headache to go away. Im weak and tired.

 

[jyearta]

smacking my lips was one of the things my husband told I did.

Even through I knew where I was what people were saying, It's weird how I couldn't know what I was doing???????

I have had that for a few years.

For 40 years I thought I had absence seiz. that was what my 1st. Neur. told me, so when I would go to another Neur. I told them my I had absence seiz. I told them of my symptoms, not a one corrected me.
It was here that I found that the lip smacking, hand movement is a complex seiz.

 

[qtowngirl]

Hi momof3,
yes lip smacking, swallowing, picking of the clothes, reaching for objects (ie: pick up an apple and start carrying it around the house), are signs of a complex. as arnie and i talked about yesterday, some symptoms do seem to overlap (swallowing has been seen in simple as well), but most are fairly defined. one of the main of a complex is not remembering doing it afterwards - that wouldn't happen with a simple partial.
Hope your head gets better, days like this are for resting that's for sure.

 

[momof3boys]

Thanks everyone. I just wanted to make sure the smacking of the lips would be from a complex partial seizures, since its been so long since I last had one. If I recall right, i think i was around 20 when I last had a complex partial seizure. So what happened last night was something I wasnt use to when it comes to seizures Ive had over the past few years.


Im resting for sure. I feel so tired and my head is still hurting. So Im just taking it easy.

 

[qtowngirl]

TEMPORAL LOBE EPILEPSY (TLE) 2010: epilepsy.org.uk...

Symptoms of simple partial seizures in the temporal lobes:

Flushing
Sweating
Going pale (usually due to blood draining out of the face after the 'flushing')
Experiencing a churning feeling in your stomach
Seeing things as smaller or bigger than they really are
Imagining you can see or hear something that is not actually happening
Smelling non-existent smells
Tasting non-existent tastes
Feelings of fear, panic, sadness or happiness, or feeling detached from what's going on around you.
Vivid memory 'flashbacks' An intense feeling of 'deja vu', when you are convinced you have experienced something before - even when you haven't.
Feelings of 'jamais vu' when you are unable to recognize things that are very familiar to you.


Symptoms of complex partial seizures in the temporal lobes:
Chewing
Smacking your lips
Swallowing (as I'm positive I only have simple partials I believe I swallow b/c my stomach always churns and as with nausea, my throat starts to feel ‘wet').
Scratching your head
Fumbling with buttons
Removing items of clothing
Staggering around
Wandering off. Recovery of full awareness may be minutes or hours late, with you being unable to remember anything.

-It's amazing too how one can turn into the other within a millisecond. At first you may have been feeling fear and sweating then without realizing it you're smacking your lips and stumbling around. All being so jumbled into one makes it harder to differentiate what kind you had, or both. The best is someone watching you and making notes of the order of things.

 

[Chris515]

I hope you're feeling better soon.. I've been told I had lip smacking during sp's occasionally. Doesn't sound like it happens much to people with sp's but my family has told me that I do it during a sp. I haven't had a cp in 20 years or so.

I don't ever remember doing it though, I guess my brain is pre occupied with everything at the moment...

 

[momof3boys]

Thanks everyone.

This is the first time in a LONG time that Ive had a seizure where I was smacking my lips. My husband said I did it, and didnt do it for very long, but after I came to, I dont remember doing it. So thats a big point I was the address to the dr. Where as all my other seizures Ive had, I was aware of what was going on, but there were no lip smacking in them. I called this morning around 8, left a message, but havnt heard back. Its now after 1pm, i hope they call today and dont leave me hanging over the weekend.

 

[arnie]

In my experience, I can THINK that I am aware of everything, but I never am aware of the lip-smacking. The other night I was talking to my wife and we were reading something on the computer. I started having a seizure, kept on reading aloud whatever I had been reading to her, looked at the clock on the computer to see the time (6:02), and thought "am I smacking my lips?" and didn't think I was. Right about then my wife told me to stop talking because it sounded funny trying to talk around my lip-smacking! I just can't tell! I had another sz yesterday afternoon when my wife was there, and I actually put my hand on my mouth to see if my lips were moving. In that case they weren't. It doesn't always happen, but I can't tell when it does. Maybe I will always try to touch my mouth when I have one!

I know how headachy and dragged out you can feel. I was like that for much of the day yesterday.

Carry on!

 

[momof3boys]

Oh gosh I feel like I can sleep FOREVER today! I had to pick myself up out of bed at 1pm! The only reason I told myself to get up was because I kept thinking how in the world if I sleep for so long, am I going to sleep tonight? My eyes feel like there are rocks on them, and my head feels like a bomb went off. Not good.

 

[CQ:)]

Kristin,
Sorry to hear about the seizure you had, I hope your neurologist does get back to you soon.

 

[momof3boys]

Turns out, i got a call back from their office at around 3pm today... his nurse said he wasnt in the office today and she wont be able to let him know of the changes til monday. Im scared to death of what might happen over the weekend. I dont feel right at all. I feel as if Im out of it... my head is pounding, Im tired, and feel like im in slow motion....

 

[CQ:)]

Turns out, i got a call back from their office at around 3pm today... his nurse said he wasnt in the office today and she wont be able to let him know of the changes til monday. Im scared to death of what might happen over the weekend. I dont feel right at all. I feel as if Im out of it... my head is pounding, Im tired, and feel like im in slow motion....

I'm sorry but I think the nurse was slack for waiting so long to ring you back.
If she knew all along that he wasn't in the office all day there is no reason why she couldn't have rung you back this morning.
Those seizure headaches really suck, I hope you can get a good night sleep & the headache eases of a bit.
Lets hope your neurologist gets back to you ASAP on Monday.

 

[momof3boys]

Yes CQ, I couldnt agree more with you how the nurse handled this. I left the voicemail before they even opened, and yet she waits til after 3pm to call me. My mom said if we have to, and things get worse, we will go to the ER. Im just praying it doesnt come to that. Yeah this headache Ive had since the seizure happened, at 4am. I feel like all I want to do is hold my head very tightly and sleep. Im praying to god that this dr gets ahold of me ASAP on monday.

 

[jyearta]

Your Dr. doesn't have an emerg. no.?

It bad enough that she drop the ball, and that you feel so bad. It doesn't help for you to stay in a state of waiting till Mon. to get so help.

---HUGS. HUGS----

 

[momof3boys]

Your Dr. doesn't have an emerg. no.?

It bad enough that she drop the ball, and that you feel so bad. It doesn't help for you to stay in a state of waiting till Mon. to get so help.

---HUGS. HUGS----

They do have an on-call service that if needed, we can call. I dont know if my dr would be the dr on call, but we have called it before. So if things do get bad, we will call their number first before going to the ER. Its just frustrating at how they handle this type of stuff. I wish they would put their patients priorities first.

 

[Electra]

Seems like after that dinner situation your having a really stressful week. Hope you feel better soon. When I get overwhelmed or irritated I trigger seizures. It's a horrible feeling. You need some me time. I have two kids and sometimes I have to run away to get me time...and sometimes I don't even want to go home

 

[momof3boys]

The dinner thing got all taken care of on sunday. My mom realized that how she acted wasnt the right way and apologized. The seizures came on early monday morning, then lasted through wednesday. Thursday I was feeling better, but I was mostly resting and not doing much. Thursday night I went to bed and woke up at 4am having a complex partial seizure, and all day yesterday I was feeling horriable, having auras and a few seizures through out the day. Today, I wake up feeling tired again, with a headache and just feeling weak. Im at home with the kids over the weekend... at least til 3pm today and tomorrow. So Im hoping whatever is causing these will stop.