It happened again

[DancesWithPugs1980]

After things had gone pretty well for a few months... had one of my episodes last night. I had figured out that at least one major trigger was aspartame, and I cut that out completely. So, that seemed to work. But my lamotrigine was switched to a different generic recently; one that doesn't work for sh**, and I've felt really odd ever since the switch, AND haven't been able to get ahold of my provider because she's on vacation. But I also think that maybe messing up my sleep schedule might have played a role in this. Maybe kind of a chain-reaction thing. Slight med change, and the horrible sleep was kinda like last straw for my brain :\

I work 12 hour nightshifts, Wednesday through Friday, plus every other Saturday. This was my long weekend, and basically Saturday after work I just could not sleep for the life of me. Normally I go to bed around 7:30 or 8 AM. I was awake until noon, and woke up around 7 PM. Sunday was even worse, I was awake until 2:30 PM, and woke up at 9:30 PM. Then Monday night I took a nap from about midnight to 5 AM (when bf wakes up to get ready for work)... when I woke up, that's when it happened. And I know I probably shouldn't have done this, but I didn't go back to bed to sleep a little more after he left for work. Instead I went for a jog, and stayed up all day. I'll probably go to bed tomorrow morning (Wednesday) after bf wakes up, and hopefully catch up on sleep. I had plans for the afternoon today, and didn't want to risk oversleeping if I went back to bed. So I did my jog, came home and dorked around online until it was time to get ready to leave. So by the time I go to bed in the morning I'll have been awake for 24 hours... so I suspect it'll happened again either shortly before falling asleep, or shortly after waking up since those are always when they happen.

I dunno, guess I just needed to whine. I was so happy that things had gone so well, then BAM. A rude awakening for both me and my bf. I hate having them, and they also scare the crap out of him because he doesn't know what to do. He hasn't witnessed them often, but when he does it really frightens him.

 

[Gillette]

I'm so sorry to hear of your news, it's so disheartening when things are going so well that you kind of get into a routine and push yourself a bit harder than you normally would. I wish you well and hope you stay safe and seizure free and that it passes you by. Get yourself the rest that you need and have a chat with your partner so that he isn't as distressed and can comfort you in a way that is best for both of you.

 

[cadsgj]

DancesWithPugs1980,
While the time up of your days is different than what I could deal with (maybe too old or maybe the way life is with seizures for me), I certainly know the story of seizures sneaking back into ones life. While over the last 10 years I've dealt with a seizure briefly every now and then, two and a half months ago they came back as a regular part of my life. Gillette made the comment of how one may "get into a routine and push yourself a bit harder" and I know this so well. That is totally me. I really do hope that things settle back down for you and the seizures run away again