Livinonaprayer
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Hi KarenYes, acidosis means too much acid in the body. Two seizure meds -- Topomax and Zonegran can cause this problem. It can be quite serious -- leaching calcium from the bones, causing extreme fatique, and can even cause seizures.
As far as the Tegretol, I know what you're saying. We don't want the dangerous side effects, yet we don't want the seizures either. I think I'd go ahead with lowering the dose, though. If meds are at toxic level -- that can be pretty serious. We've had that happen two different times with two different meds, and both times, Jon had serious and permanent complications.
I had Ethan back at the doctors today as he was complaining about pain near his breast area , everything is ok he just has sore muscles and the gp doesnt think that it is a side effect from tegretol , also the hospital doctor is saying that tegretol isnt causing any of these side effects and i have to put him back on his original dose of 800mg , my Husband and i are getting frustrated by this so we are both going together to the hospital on friday to ask more questions as the doctors want's to check Ethan over again .I also have booked Ethan into the optomertrist to get his eyes checked again as they are worried this could be the cause of the headaches .My Gp also said that if tegretol isnt working they would change the medication to something else .How is Jonathan doing now ? Those side effects sound dangerous ,it is a real worry isn't it ? ,. Do you add the baking soda into his food ?