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This is the way it seems to me at the moment. Zebinix is probably a good drug for some, it has caused arguments between myself and my wife because the Zebinix masks all/most physical side effects like the movement of your legs or arms and so on but it does not stop the seizures, you still know you had a seizure though and boy do you know. I think it makes the seizure worse in ways, it does make your head sorer and the headache seems stronger, if anything it seems to intensify the strength of the seizure. The problem is you can only rely on yourself to know when you had a seizure because nobody else will realise it and that is not good as others do not tend to believe you had a seizure, thus the arguments and rows when you come to. It seems to cause a rash in your hair line and eye brows but this could be caused by a change in shampoo so I will have to start removing one by one the things that could cause it. It does effect your eye sight and there can be swelling under the eye.
It can still make you feel nausea after taking it at times but not as bad as it did at the start. The tiredness or lack of energy stays with you and unless you make yourself get up and do something, whether its hovering or going for a walk you will never leave the chair. The water shed you have with it is important and should not be forgotten, the one thing you have to fight all the time is the sleep, you can fall asleep at the click of a finger and it does not matter where. I have and do fall asleep in my mother-in laws just by sitting down, I fall asleep sitting on the chair watching television or on my laptop while here, I have gotten a skin infection on my leg, it will not clear up fully even with antibiotics. It can cause you to be itchy at times but no more than normal.
The thing I do not like is the fact it masks the physical effects of a seizure causing arguments. Will I work again, No and the zebinix has its part to play in that, I do drive a little, maybe once a week with my wife to the shop 1/2 mile away and back but that is it, my driving is curtailed by my own choice because I am still unsure. This was scary at the start as I knew nobody else on Zebinix and its still scary at times. Can you imagine PM sombody here and on the third time you fall asleep, you wake up 3 hours later to find that person has logged of and you have to explain that you fell asleep, not a nice feeling.
It can still make you feel nausea after taking it at times but not as bad as it did at the start. The tiredness or lack of energy stays with you and unless you make yourself get up and do something, whether its hovering or going for a walk you will never leave the chair. The water shed you have with it is important and should not be forgotten, the one thing you have to fight all the time is the sleep, you can fall asleep at the click of a finger and it does not matter where. I have and do fall asleep in my mother-in laws just by sitting down, I fall asleep sitting on the chair watching television or on my laptop while here, I have gotten a skin infection on my leg, it will not clear up fully even with antibiotics. It can cause you to be itchy at times but no more than normal.
The thing I do not like is the fact it masks the physical effects of a seizure causing arguments. Will I work again, No and the zebinix has its part to play in that, I do drive a little, maybe once a week with my wife to the shop 1/2 mile away and back but that is it, my driving is curtailed by my own choice because I am still unsure. This was scary at the start as I knew nobody else on Zebinix and its still scary at times. Can you imagine PM sombody here and on the third time you fall asleep, you wake up 3 hours later to find that person has logged of and you have to explain that you fell asleep, not a nice feeling.
If they are outweighing the positives it is worth getting in touch with the neurologist -- even if getting him to listen and make changes is a pain in the butt. Have you mentioned the rash to your regular doctor? There may be something he can do to help with that. Since Zebinix causes dry skin, make sure you are drinking a lot of water and maybe try a skin cream to see if it helps with the itching.
