Limitations? (PSY Project)

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CainDogGirl

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Are there any limitations that you feel seizures have created? I know for me I don't really feel there are many. But that's coming from someone who has lived almost all their life with them. It could be I expected to not be able to do certain things and so they do not feel like limitations. The only one I really think I have is that I can't drive. But it doesn't even bother me too much. What about you?
 
limitations

Yes I have limitations never been able to drive or work because of my seizures.

I can't go in big crowds because big crowds trigger my seizures.


Belinda
 
you can't miss anything you've never had such as driving for me.

My family is good at bringing up things I shouldn't do because I might have a seizure.

I have to watch myself in the summer since I live in the south with the heat&humidity, that can bring on a seizure with me.:twocents:
 
The only limitation I have is solo swimming. It is more-or-less because it scares me. I do everything else I could do before I was diagnosed.

Other than that, there have been times I can't drive, but they just last six months, and life goes on.
 
The biggest limitation for me is having to keep my medication with me.

Since the meds control my seizures right now, there aren't any other limitations. I don't think I can scuba dive or bungee jump, but I don't have a hankering to do those things anyway. :)
 
From reading several other posts I must say that I don't feel I have any limitations. Granted, I can drive and that would be a VERY big limitation but due to the fact that I am still driving, I am really not affected that much.
I think the other advantage that I have is that none of my family members realize, or know, how serious this could be and I have not really pursued the issue. I know when I was first diagnosed my husband was freaking out. He kept asking me every 5 minutes, "Are you ok?' My 3 sons don't really know or care about it. Which, I guess, is ok.
My sister-in-law wants me to get off the meds totally. She seems to think I won't get anymore seizures. My youngest son is just concerned because I take care of his son.
That's why I'm in such a quandary. Do I risk having another seizure? or do I try to wean myself off? I really don't know if the dr. has MY best interest at heart.
What to do?
 
Definitely talk to your neuro about weaning yourself off. Or talk to a different neuro if you don't feel comfortable with your current one. I've tried twice to wean off (with the neuro's okay), but haven't been able to remain seizure-free. Most recently, after 6 years seizure-free on meds, my neuro asked me if I wanted to try again. But we did a sleep-deprived EEG which showed that abnormal brainwaves were still occurring, so I decided it was too risky. You could ask your doc about doing an EEG now or at some point during the taper process to see if anything shows up.
 
Yes, I will speak to my neurologist and have him do an eeg. I haven't had one since 2008 anyway. I do not want to risk having another seizure but I also would like to think that I know my body better than anyone else and that if I can control this with some lifestyle changes then I could go without or even a limited dosage of medication. Thank you for your advice and will keep you updated.
M
 
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