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I feel the same way your son does. Even though, apart from a few instances, I have been pretty much seizure-free for the last 20+yrs.Have you ever heard of Caring for Kids? This was started because Diane who Started it had 2 daughters she adopted that died from epilepsy. I watch my boy like a hawke. He told me today that he is afraid of dying from epilepsy. We cried together. I am so sorry for your heart. I just don't understand why we only get to love a while. Please accept all my love and sorrow. And in my heart I will also celebrate her .