Staceypt
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Hi
I'm frustrated - and I know seizure meds take a while to get straightened out, but it is still frustrating. My son was diagnosed a few months ago with absence seizures and starting taking Keppra. Didn't work - seizures got worse, they added Trileptal - and they decided he was really having partial seizures (originating in Frontal lobe) not absence seizures. (MRI negative) Got to 4ml of Trileptal twice a day - still seeing seizures. Got to 7ml twice a day - my son (almost 8 y.o) started c/o headaches and "not feeling well". Did stat bloodwork - so far everything has come back ok (still waiting on thyroid and keppra/trileptal levels). We have an neuro appt tomorrow and I believe (from e-mailing with the neuro) that she is going to put him on Topamax tomorrow and get rid of the Trileptal.
Anyone use Topamax for their kids? Any side effects I should know about? I'm a mess about these seizures. I know they aren't hurting him and he doesn't even know he is having them, but I hate to see him seize. He had 6 in one hour at karate class tonight, 5 in 15 minutes of homework. It breaks my heart. And I'm so worried he is going to get hurt on the stairs or something. I wish we could just find a med that works for him already.
Thanks for listening - any advice/etc appreciated.
We are seeing our neuro at 10:15 tomorrow morning... curious to see what her plan is.
Thanks
Stacey
I'm frustrated - and I know seizure meds take a while to get straightened out, but it is still frustrating. My son was diagnosed a few months ago with absence seizures and starting taking Keppra. Didn't work - seizures got worse, they added Trileptal - and they decided he was really having partial seizures (originating in Frontal lobe) not absence seizures. (MRI negative) Got to 4ml of Trileptal twice a day - still seeing seizures. Got to 7ml twice a day - my son (almost 8 y.o) started c/o headaches and "not feeling well". Did stat bloodwork - so far everything has come back ok (still waiting on thyroid and keppra/trileptal levels). We have an neuro appt tomorrow and I believe (from e-mailing with the neuro) that she is going to put him on Topamax tomorrow and get rid of the Trileptal.
Anyone use Topamax for their kids? Any side effects I should know about? I'm a mess about these seizures. I know they aren't hurting him and he doesn't even know he is having them, but I hate to see him seize. He had 6 in one hour at karate class tonight, 5 in 15 minutes of homework. It breaks my heart. And I'm so worried he is going to get hurt on the stairs or something. I wish we could just find a med that works for him already.
Thanks for listening - any advice/etc appreciated.
We are seeing our neuro at 10:15 tomorrow morning... curious to see what her plan is.
Thanks
Stacey