mis-diagnoses???

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jayde-101

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for they last 9 or so months i have been being tested and treated for epilepsy... and i have just been referred to a sleep centre and they are suggesting that it may be narcolepsy with cataplexy ... im not sooo confused not sure what to think anymore i just dont know ... anyone else had similar happen ??

its been happening since around 16 year old and im 22 now ..:( just want a firm diagnoses :'( i feel like im back to sqare one :(
 
Hi Jayde,

I know what you mean about wishing, hoping and praying for a firm diagnosis! I have a solid 15years of childhood epilepsy history, tonic clonics etc, yet it's still taken me 2 years to get a diagnosis of my adult epilepsy. I think the key is finding a good Neurologist you trust, and being patient as long as you feel he/she is trying to follow up potential "leads". Sounds very CSI doesn't it.

What is cataplexy?

Do you keep track of your seizures/symptoms? Endless has just recently put me on to www.seizuretracker.com and it's fantastic! Have a look =)

Good luck, I hope you get some answers soon.
 
cataplexy is a loss of muscle tone which its brought on by emotions such as sadness and laughing and its always teamed with narcolepsy
 
When will you be having the sleep study done?
 
just waiting for the appointment to fall on the doormat now :) so not sure yet
 
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