helenwayne
New
- Messages
- 8
- Reaction score
- 0
- Points
- 0
My 6y/o son had a tonic-clonic seizure at school about 5 weeks ago. At first I thought he must have hit his head. The idea of Epilepsy really didn't occur to me. But we left the ER with a diagnosis of "first seizure - new onset seizure." Still I wasn't convinced. But of course I took that seriously and we went through the tests. There was definitely no denying the EEG results. There was activity both during sleep and wake, though with sleep there was more generalized discharges. Looking back I have always called him a "restless" sleeper and has "night terrors." So I do believe it's possible it's happening in sleep. He has still only had the one GTC. Thankfully the MRI was fine. While waiting to see the neurologist to get some answers, I googled and googled everything I could about epilepsy.
Yesterday we saw the neurologist and the diagnosis they gave us is "focal and generalized mixed seizure disorder with myoclonus." But no matter how much I google I can't find info on this. I don't know what this means in average human-speak. They also said his chance at having another daytime GTC seizure is over 80%. She prescribed him Keppra, low dose to start. I suppose I assumed he'd be diagnosed with something that fit in one of those boxes, and this apparently doesn't. Does anyone have experience with this, or can shed a little light on what that means for now?
I will say for additional information my son is a sweet and happy boy. He has some speech issues, he is a little bit delayed for his age in that area, otherwise there are no major concerns and he is continuing to progress in his development. He is also a twin.
Yesterday we saw the neurologist and the diagnosis they gave us is "focal and generalized mixed seizure disorder with myoclonus." But no matter how much I google I can't find info on this. I don't know what this means in average human-speak. They also said his chance at having another daytime GTC seizure is over 80%. She prescribed him Keppra, low dose to start. I suppose I assumed he'd be diagnosed with something that fit in one of those boxes, and this apparently doesn't. Does anyone have experience with this, or can shed a little light on what that means for now?
I will say for additional information my son is a sweet and happy boy. He has some speech issues, he is a little bit delayed for his age in that area, otherwise there are no major concerns and he is continuing to progress in his development. He is also a twin.
Last edited: